Understanding the Grief and Loss Experiences of Carers

Kerry Jones is a Senior Lecturer at The Open University, UK, where her research and teaching focus on death, dying, grief, bereavement and end-of-life care. As Co-Lead of the Open University Carers Research Group, she has published and presented her research on care homes and care-giving staff during the pandemic, stillbirth neonatal death, parental bereavement, brain injury, dementia and suicide. Kerry was an academic consultant for A Time to Live on BBC 2. Joanna Horne is a Senior Lecturer in Psychology and Counselling at The Open University, UK. She conducts research within the areas of physical activity and carer wellbeing, and support needs of young carers. Jo is a member of the Open University Carers Research Group.

List of figures and tables

List of contributors

Introduction

1: Ambiguous loss: Personal and professional reflections

2: Impact on identity for those working as healthcare professionals when taking on the role of carer

3: ‘I could cry all day, every day, about my losses’: Caring for young adults with life-shortening conditions – families’ experiences of disruption and loss

4: From physically active to physically inactive: Understanding the experiences of a familial carer’s loss of self

5: Both sides of the coin: A mother’s experience of caring for an adult daughter living with serious life-limiting illness

6: ‘God hasn’t given up on them’: Christian dementia carers’ narratives of experiencing and challenging ‘anticipatory grief’ and ‘social death’

7: The grief of care partners of people living and dying with dementia: A psychodynamic perspective

8: When an adult with significant caregiving responsibilities for children is at end-of-life with cancer: A carer’s pre-bereavement and post-bereavement experiences

9: When caring ends: Exploring the hidden aspects of loss in trajectories out of caring in Australia

10: Former carers: Grief, loss and other stories

Index