CHAPTER 1
According to the Centers for Disease Control website, many chronic illnesses feature fatigue as one component or even the primary one. Maybe you got diagnosed with multiple sclerosis, an autoimmune condition, cardiovascular disease, cancer, or a neuromuscular disease, maybe even Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), a complex illness associated with low-level radiation exposure. In the Covid19 pandemic age, I am also addressing those of you who survived Covid19 but still suffer lingering effects. You are known as long-haulers, and I feel for you as I suffered the same way with a post-viral fatigue myself. Many doctors do not believe that the effects of Covid19 can still exist and fail to give you any medication for lingering effects. Viruses sometimes leave a signature behind or hide inside the spinal cord. In the first case, we call it a post-viral syndrome, which needs to follow its own time schedule to disappear. An example of a virus hiding in the spinal cord would be the chicken pox, varicella virus. We can have the illness in childhood and then as adults; it returns in a very different and painful disease called shingles. Epstein Barr virus is another example of a virus that presents as mononucleosis. It can then go into hiding and return when under stress in some cases of chronic fatigue syndrome.
Each illness has its own road on which to travel, but the journeys have some places in common. Most often, we need to change our lifestyle, or it is forced on us. We take medication and perhaps are forced to exercise to maintain muscle mass. I’m sure some of you reading this are very familiar with the nasty side effects of medications. Did your doctor prescribe steroids causing you to retain fluid? Does chemotherapy destroy your appetite giving you sores in your mouth and making you lose weight, especially muscle? Are you taking an NSAID (non-steroid anti-inflammatory drugs) such as Advil, putting your GI tract at risk for ulcers? Then when you develop the symptoms of ulcers, the doctor prescribes another medicine to counteract the side effects. Why must you suffer from the harmful effects of extra medications when there are foods you can eat that will eliminate the side effects!?
Eating foods dense in nutrients, enhances wellbeing; increases energy; helps us think more clearly; and provides the edge over other illness that might creep up from the long-term use of some medicines. Steroids, for example, come with a number of side effects. Doctors prescribe them for a variety of reasons, from stubborn rashes all the way to inflamed bowels, joints, and many autoimmune conditions. For the long-haulers, reading this, you may have been given this to keep your blood pressure up and mitigate the dizziness. However, this class of medicine puts us at risk of losing the main component of our bones: calcium. Even if you are using the inhaled form of a steroid, found in some inhalers, you could be losing calcium, putting you at risk for the bone-thinning disease, osteoporosis. The key to your bones’ surviving this high-risk medication is to consistently increase the consumption of foods high in minerals and vitamins to keep the calcium where it belongs, inside the bones, and take the calcium supplements our health care provider recommends.
Imagine having the stamina to participate in that evening show that you’ve been wishing you had the energy to attend. Some of the most dangerous drugs on the market are biological response modifiers, (Humira, Rituxan, Remicade or Herceptin) which many people with rheumatoid arthritis, IBD, or some skin conditions are given. These are also used in cancer therapy. And yes, they can produce miraculous improvement. However, just like every drug, there’s a downside: their use increases the risk of many other diseases besides osteoporosis. Even the Flu could become a major risk to your health as these medications turn off the protective mechanisms our immune system uses to hunt down invading organisms. Wouldn’t it be empowering if you could prevent other illnesses while enjoying a diet that promotes a strong, vital immune system!
If you were diagnosed with heart disease and taking diuretic pills, you might not need them as often if you follow a diet naturally rich in the minerals that keep blood pressure from skyrocketing. Imagine saying good bye to those pills! Of course, you need to do this with your doctor on board. Eating foods that keep inflammation at bay may also prevent the disease from occurring from the very start.
HIDDEN INFLAMERS
We think of bread as the “Staff of life.” However, for many of us with chronic illness, the GI tract may not work as efficiently as it once did. Did you know that the bread we eat can CAUSE inflammation, joint aches, brain fog, and weakness if you are one of the thousands of people that have developed an intolerance to the higher gluten flour used in commercial bread baking? I will provide you with an eating plan that does not rely heavily on wheat.
Feeling stronger, empowered, and more knowledgeable about your body is within your grasp. Even with obstacles in your path, you can embrace change with an open mind. I know you chose this book because you are too damned tired to cook, or the thought of creating a meal, sends you to the couch. But you can still eat in ways that will energize you and help you sleep more soundly while building up your immune system, even if you don’t know the difference between a crock pot and a chafing dish.
This book gives you the tools you need to nourish your body while guiding you along the path to increased vitality. First, you may like to learn about my path and what brought me to writing this book.
THE MONO THAT WASN’T
One hot summer’s day I started to experience unbelievable fatigue. In addition, my throat was sore, my ears ached, my liver was tender, and I lost my appetite. My doctors thought I had Mononucleosis except the mono-spot came back negative. Doctors have a more descriptive name for the sore red throat, referring to it as the “crimson crescents.” To me, it felt as I had accidentally inhaled the entire wad of cotton that comes packed inside a bottle of aspirin and it felt as though half of the wad was hanging down in the back of my throat. I found it difficult to concentrate and couldn’t comprehend what I read. The words swam across the page, losing all meaning. Two months later came emergency room visits with chest pain diagnosed as “Costo-chondritis” a painful, yet harmless irritation of the cartilage in my chest wall, as well as severe back pain. My neck hurt repeatedly, and my head felt too heavy to hold up. I felt dizzy all the time and had minimal appetite. Many specialists ran more tests, but no one illness could be diagnosed, even though the symptoms continued to linger.
Thus began a year of doctor appointments, physical therapy visits, seeing a chiropractor for the first time, and resting in bed the rest of the time. It was the onset of my CFIDS, yet I did not know it and would not receive that diagnosis until years later. Tests followed, including X-rays, MRIs, and CT scans that showed orthopedic problems but nothing which could account for the exhaustion and infections. My doctors told me that the amount of pain I experienced did not match up with the findings on their scans. A year or two later, came a diagnosis of Fibromyalgia (FM). All the doctors could tell me was that it would not progress and become worse, but I would need physical therapy to strengthen me. One physical therapist explained that my muscles had a fibrous covering all over them, much like “Spiderman” that needed to be released through massage and ultrasound treatments.
FROM THIS DAY FORWARD
I was referred to a rehabilitation hospital where I met with my physiatrist, Dr. “X.” Physiatrists practice ‘physical medicine’, which to me is an expanded version of physical therapy (PT) with the addition of painful procedures such as nerve blocks. If the PT’s are unable to get a muscle to stretch adequately, they use “Spray n Stretch” to numb the pain and send you back to the doctor for an additional round of torture. Would you believe Dr. “X” would park his motorcycle in the lobby of the hospital, placing his black shiny rider’s helmet on the office desk? I don’t know what you do, about motorcycles, but ER doctors refer to them as “donor cycles.” I guess Dr. “X” considered himself to be invincible.
Rehab hospitals deal with severely damaged brains and spinal cords, and they offer the treatment of serious diseases such as multiple sclerosis and muscular dystrophy, employing many physiatrists, neurologists, and even social workers on staff. Despite its cheerfully painted framed pictures of wild birds in the outpatient waiting room, I felt only pain and despair seeping out of every wall. One day, a very young neurologist came at me with a pin, which he literally poked completely through my skin, starting from my head downward, to check my sensation; I won’t choose that from the menu of tortures ever again.
I had left the safety of my local hospital where I knew everyone and entered the inner sanctum of a place where patients routinely undergo painful tests and procedures in order to deal with conditions that tear their lives apart. Did I really need to undergo various forms of torture wearing nothing more than a cotton gown in order to become well?
THE ANGEL INTERVENES
I endured outpatient hospital visits two or three...