Social Research Methods in Dementia Studies

John Keady is Professor of Older People’s Mental Health Nursing, a joint appointment between The University of Manchester and the Greater Manchester Mental Health NHS Foundation Trust. Lars-Christer Hydén is Professor of Social Psychology at Linköping University, Sweden and director of the Center for Dementia Research [CEDER]. Dr Ann Johnson is a person living with a diagnosis of dementia in Greater Manchester, UK. She was a Nurse Tutor at The University of Manchester prior to taking early retirement in 2005. Dr Caroline Swarbrick is a Research Fellow in the Dementia and Ageing Research Team at The University of Manchester, UK.

Acknowledgements

Contributors

Foreword: Ann Johnson

Introduction: John Keady, Lars-Christer Hydén, Ann Johnson and Caroline Swarbrick

Chapter 1: Developing the Co-researcher INvolvement and Engagement in Dementia model [COINED]: A Co-operative Inquiry Caroline Swarbrick and Open Doors

Part 1: Social Research Methods-Participatory and Visual Media

Chapter 2: Walking interviews as a research method with people living with dementia in their local community Agneta Kullberg and Elzana Odzakovic

Chapter 3: Audio recorded data as a method to understand encounters between people living with dementia and social workers Johannes Österholm and Annika Taghizadeh Larsson

Chapter 4: Video data as a method to understand non-verbal communication in couples with dementia Elin Nilsson, Ali Reza Majlesi and Anna Ekström

Chapter 5: Video data and biographical music as a method to record and explore interaction in semantic dementia Jackie Kindell and Ray Wilkinson

Chapter 6: Video and observation data as a method to document practice and performances of gender in the dementia care based hair salon Sarah Campbell and Richard Ward

Part 2: Social Research Methods-Application and Innovation

Chapter 7: Ethnographic methods for understanding practices around dementia among culturally and linguistically diverse people Eleonor Antelius, Mahin Kiwi and Lisa Strandroos

Chapter 8: Photography and case study interviewing to document intergenerational family care in Singapore-Chinese families where one member has dementia May Yeok Koo and Helen Pusey

Chapter 9: Storying stories to represent the lived experience of Deaf people living with dementia in research Emma Ferguson-Coleman and Alys Young

Chapter 10: Critical discourse and policy analysis as a method to understand dementia policies Ann-Charlotte Nedlund and Jonas Nordh

Chapter 11: Privileging the play: Creating theatre with people living with dementia Hannah Zeilig and Lucy Burke

Chapter 12: Conclusion: Messages and futures in social research methods in dementia studies Lars-Christer Hydén, Caroline Swarbrick, Ann Johnson and John Keady