International Review of Research in Mental Retardation (eBook)

Front Cover 1
International Review of Research in Mental Retardation 4
Copyright 5
Contents 6
Contributors 10
Foreword 14
Preface 16
Section 1: Longitudinal Comparisons 20
Chapter 1: Mothers and Fathers Together: Contrasts in Parenting Across Preschool to Early School Age in Children with Developmental Delays 22
1. The Father in the Family 27
2. Setting the Stage: Stress, Well-Being, and Parenting 28
3. The Collaborative Family Study: A Context for Contrasts 29
4. Parental Stress and Children with ID 30
5. Parental Psychological Well-Being in the Context of ID 36
6. Parenting Behavior with Children with ID 38
7. An Integrated Perspective 41
8. Summary and Conclusions 44
Acknowledgments 45
References 45
Chapter 2: The Transition to Adulthood for Individuals with Intellectual Disability 50
1. Introduction 51
2. Method 56
3. Results 61
4. Discussion 73
5. Conclusion 77
References 77
Chapter 3: By Choice or By Chance: Longitudinal Perspectives on Resilience and Vulnerability in Adoptive and Birth Parents of Children with Developmental Disabilities 80
1. Introduction 81
2. Hypothesis Testing: Chronic Sorrow or Crisis and Recovery 90
3. Parental Long-Term Adjustment: Multiple Variables Measured Multiple Times 92
4. Parental Long-Term Adjustment: Transition to Adulthood 97
5. Chronic Sorrow or Crisis and Recovery: Conclusions from Mean-Level Differences 98
6. Parental Long-Term Adjustment: The Importance of Personality in Predicting Resilience 100
7. Summary, Conclusions, and Directions for Future Research in the Study of Resilience 106
Acknowledgments 109
References 109
Section 2: Methodological and Sample Diversity 114
Chapter 4: Socioeconomic Position, Poverty, and Family Research 116
1. Introduction 117
2. Socioeconomic Position and Poverty 117
3. Socioeconomic Position, Poverty, and the Prevalence of Intellectual and Developmental Disability 119
4. The Impact of Socioeconomic Position on Family Functioning and Child Well-Being 123
5. The Impact of Socioeconomic Position Among Families Supporting a Child with Intellectual or Developmental Disabilities 125
6. Moving Forward: Methodological and Conceptual Issues Associated with Incorporating Socioeconomic Position into Family Resea 131
7. Conclusions 138
References 139
Chapter 5: Using Large-Scale Databases to Examine Families of Children with Intellectual and Developmental Disabilities 150
1. Studying Families of Persons with Specific Disabilities 152
2. Three Large-Scale Approaches to Family Research 154
3. Two Examples of Using Large-Scale Administrative Databases to Answer Family-Related Questions 184
4. Comparing Different Types of Large-Scale Databases 188
5. Summary and Conclusion 191
Acknowledgments 192
References 192
Chapter 6: A Rich Mosaic: Emerging Research on Asian Families of Persons with Intellectual and Developmental Disabilities 198
1. Introduction 199
2. Cross-Cultural Model of Family Functioning 200
3. Review of the Literature Within the Cross-Cultural Model 201
4. Summary and Conclusions 225
References 228
Chapter 7: Biomarkers in the Study of Families of Children with Developmental Disabilities 232
1. Introduction 233
2. Fragile X Syndrome and Related Conditions 235
3. Cortisol Profiles in Parents of Children with Disabilities 248
4. Summary and Conclusions: Next Steps in Research on Biomarkers in Families of Individuals with Developmental Disabilities 258
Acknowledgments 261
References 261
Chapter 8: Siblings of Children with Intellectual Disabilities: Normal, Average, or Not Too Different? 270
1. Siblings of Typically Developing Children 272
2. Research on Siblings of Children with Intellectual Disabilities 274
3. Use of Comparison Groups in Sibling Disability Research 277
4. Methodological Considerations in Conducting Comparison Group Sibling Research 296
5. Same or Not Too Different from Average? 299
6. The Case (or the Lack Thereof) for Sibling Interventions 302
7. Concluding Thoughts 303
References 305
Section 3: Interventions 316
Chapter 9: Family Support Interventions for Families of Adults with Intellectual and Developmental Disabilities 318
1. Introduction 319
2. Impact of Having a Family Member with I/DD 320
3. Family Support Public Policies and Programs 330
4. Family Support Psychosocial Interventions 336
5. Conclusion 343
Acknowledgments 344
References 344
Chapter 10: Interventions Aimed at Improving Child Language by Improving Maternal Responsivity 352
1. Responsivity is a Multilevel Construct 354
2. Responsivity Relates to Child Outcomes 358
3. Interventions Aimed at Improving Responsivity 363
4. Summary and Conclusions 370
Acknowledgments 372
References 372
Index 378
Contents of Previous Volumes 386