The Oxford Handbook of Down Syndrome and Development

Jacob A. Burack is Professor of School and Applied Child Psychology and Human Development in the Department of Educational and Counselling Psychology at McGill University. He is the founder and director of the McGill Youth Study Team (MYST), the scientific director of the Summit Center for Education, Research, and Training (SCERT), and was a founding co-investigator of the Autism Research Training (ART) and National Aboriginal Mental Health Research (NAMHR) networks that were funded by the Canadian Institutes for Health Research. Together with his students, Dr. Burack's work is guided by the MYST motto of "excellence in the study and education of all children." Jamie Edgin is Associate Professor and Director of the Cognition and Neural Systems Program in the Department of Psychology at the University of Arizona. Her area of expertise is sleep and neuropsychological development in typical and atypical development, including over 20 years of work with individuals with Down syndrome. She has served on the science advisory board of NDSS since 2016. Dr. Edgin currently directs the University of Arizona Public Policy Fellowship in the Sonoran UCEDD, focused on policy development and advocacy for persons with developmental disabilities. Leonard Abbeduto is Director of the MIND Institute, the Tsakopoulos-Vismara Endowed Chair, and Professor of Psychiatry and Behavioral Sciences at the University of California, Davis. His current research is focused on understanding variation in language outcomes in various conditions associated with intellectual disability, the measurement of treatment effects in clinical trials, and the use of distance technology to deliver behavioral treatment. He is the Director of the NICHD-funded MIND Institute Intellectual and Developmental Disabilities Research Center. He also co-directs the UC Davis Redwood SEED Scholars program, which is a 4-year, residential, inclusive college program for individuals with intellectual disabilities.

Section 1: Historic and Contemporary Scientific Approaches
1. History: Science, Policy, and Families
Roy Brown, Margaret R. Kyrkou, Karen Watchman, and Robert M. Hodapp

2. Developmental Approaches
Jacob A. Burack, Jessica Lai, Jillian Stewart, and Oriane Landry

3. Social-emotional Development
Amanda Dimachkie and Connie Kasari

4. Animal Models
Ana Moyer and Roger H. Reeves

Section 2: Social Development and Family Relations

5. Mother-Child Dyads
Penny Hauser-Cram, Ashley Woodman, and Linda Gilmore

6. Parental Socialization & the Down Syndrome Advantage
Robert Hodapp and Ellen Casale

7. The Roles of Siblings
Monica Cuskelly

8. Fears, Phobias, and Rituals
David W. Evans and Mirko Uljaravic

9. Family Care of Adults
Robert Hodapp, Kelli Sanderson, and Maria Mello

Section 3: Cognition and Neuropsychology
10.Infant Development
Hana D'Souza and Dean D'Souza

11. Lifespan Brain Development
Nancy Raitano Lee, Manisha Udhnani, and Taralee Hamner

12. Perceptual Signatures
Jacalyn Guy, Christina Marcone, and Armando Bertone

13. Attention
Ellie Kaplan, Elizabeth P. McKernan, Justin B. Kopec, Erin Matsuba, and Natalie Russo

14. Working Memory
Liz Smith and Chris Jarrold

15. Executive Function
Deborah Fidler, Lisa A. Daunhauer, Elizabeth Will, and Emily Schworer

16. Language Development
Leonard Abbeduto, Natalie Arias-Trejo, Angela John Thurman, Jessica Ramos-Sanchez, and Laura Del Hoyo Soriano

17. Motor Skills
Shannon Ringenbach, Nathaniel Arnold, Kahyun Nam, Simon D. Holzapfel, Chih-Chia Chen, Corina Lopez, and Monica Szeto


Section 4: Comorbid Conditions
18. Brain Aging and Alzheimer's Disease
Alex Helman, Kathryn L. Van Pelt, Frederick A. Schmitt, and Elizabeth Head

19. Autism Spectrum Disorder
Cory Shulman

20. Sleep Disorders
Katharine Hughes, Payal Khosla, Lauren Pisani, Goffredina Spanò, and Jamie O. Edgin

Section 5: Interventions & Future Directions
21. Language
Steven Warren, Shelley L. Bredin-Oja, Laura J. Hahn, and Nancy Brady

22. Dementia
Carla Startin, Shahid Zaman, and Andre Strydom

23. Animal Models and Development
Nadine M. Aziz and Tarik Haydar

24. Future Directions
Leonard Abbeduto, Jamie O. Edgin, and Jacob A. Burack

Epilogue: The Voices of Persons with Down Syndrome and their Families
Jacob A. Burack and Emily Stubbert