Dementia Lab 2021: Supporting Ability Through Design (eBook)

Organization 6
Scientific Committee 6
Organizing Committee 6
Preface 8
Contents 10
1 Scaling Participatory Methods for Cultural Change in Long Term Care Homes 12
Abstract 12
1 Shifting from Institutionalized Patient-Centered Care, to Social, Person Directed Care 12
2 Partnering to Integrate Participatory Design Research Practice into Care Innovation 13
3 Culture Creating Strategy 14
4 Scaling Participation 15
4.1 Problem Finding: Developing Themes 15
4.2 Scaling the Reach of the Voices We Heard: Communication Designed to Re-Frame the Future 17
4.3 Regional Strategy Launch “Come Alive”: Create the Space for Health Care Workers to Lead Co-creation Activities 18
4.4 Tools Designed for Person-Directed Culture Development 20
5 Pandemic Pivot 22
6 Conclusion 23
References 23
2 The Challenges of Creating Design Requirements for Products for People with Dementia 25
Abstract 25
1 Introduction 25
2 Challenges & Uncertainties About Creating a List of Requirements for ‘Good’ Products for People with Dementia
3 Tackling the Challenges and the Uncertainties 28
3.1 Expert-Led Study 28
3.2 Creating the Initial Lists of Requirements: Person-Centered Dementia Care and Quality of Life as a Starting Point 29
3.3 Rethinking Design Requirements for Products for People with Dementia 31
4 Integrating the Insights into a Certification List on Leisure 32
5 Conclusion and Critical Remark 33
Acknowledgements 34
References 34
3 Designing Conversations: Using Life Stories to Improve Dementia Care 36
Abstract 36
1 Background 36
2 Transitions 38
3 A Design Approach 39
4 Case Study 1—Knowing the Person 39
4.1 Method 39
4.2 Results 40
4.3 Summary of Findings 45
4.4 Person-Centred Design Development of a Reminiscence and Conversation Kit 46
5 Case Study 2—Perspectives 47
5.1 Relationship Building & Identity
5.2 Co-creation & Personalization
5.3 Storytelling & Validation
5.4 The Research Study 52
5.5 Method 52
5.6 Findings 53
5.7 Next Steps 54
6 Discussion 55
7 Conclusion and Future Work 56
References 56
4 Exploring How a Multisensory Media Album Can Support Dementia Care Staff 59
Abstract 59
1 Introduction 59
2 Background 60
2.1 Multisensory Stimulation 60
2.2 Reminiscence in Care Practices 60
3 Designing the Multisensory Media Album 61
3.1 Methodology 61
3.1.1 Observation and Creative Workshop 61
3.2 Design Rationale 61
3.3 Design Description 62
4 Engaging with the Multisensory Media Album 63
4.1 Study Setup 63
4.2 Care Staff’s Duties and Responsibilities 63
4.3 Interactions Between Care Staff and Residents 64
4.4 Care Staff’s Thoughts on the Design 65
4.5 Context of Using the Design 66
4.6 Regular Caregivers’ Time Constraints 66
5 Discussion 67
6 Conclusion 68
Acknowledgements 68
References 68
5 Your Moments: Co-designing a Personalized Audio Player 70
Abstract 70
1 Introduction 70
2 Approach and Results 71
2.1 Participants 71
2.2 A Brief Introduction of the Process 72
2.2.1 Final Design: Audio Player ‘Your Moments’ 73
2.3 Results of Phase 1: Two Design for One Processes 73
2.4 Results of Phase 2: Exploring Personalization with a New Participant by Continuing with the Earlier Results of Phase 1 75
3 Discussion 75
References 77
6 Lessons Learned from Remote User-Centered Design with People with Dementia 79
Abstract 79
1 Introduction and Background 79
2 Method 81
2.1 Data Collection and Analysis 81
2.2 Participants 82
3 Findings 84
3.1 Benefits 84
3.2 Challenges 84
4 Discussion 85
References 86
7 Smile: Capturing and Sharing Personal Photos to Stimulate Social Relations and Support Self-Identity in Dementia 89
Abstract 89
1 Introduction 89
2 Photos in Care Homes 91
3 Smile: Camera-Based System 91
4 Method 93
4.1 Setting and Participants 93
4.2 Ethics and Privacy 93
4.3 Data Collection and Analysis 93
5 Results 94
5.1 A Snapshot of the Everyday Life of the Resident 94
5.2 Enhancing Quality in Social Encounters 94
5.3 Offering Dignity and Normalcy 95
5.4 Improvements for Design 96
6 Discussion 96
6.1 Strengthening Social Relations in Long-Term Care 96
6.2 Moments of Dignity and Recognition of Identity 97
6.3 Limitations and Future Work 97
7 Conclusion 98
References 98
8 An Immersive Art-Based Approach to Engaging with the Embodied, Sensory and Affective Experience of Living with Dementia 100
Abstract 100
1 Introduction 100
2 Background 101
2.1 The Immersive Experience 102
3 Methodology 102
3.1 The Participants 102
3.2 Experiential and Interpretative Analysis 103
3.3 Script Development 104
3.4 Character Construction 105
3.5 Virtual Production 105
3.6 The Virtual Character 105
4 Conclusion 106
References 108
9 Assembling a ‘We’: Tracing the History of My Doctoral Research to the People Who Helped Shape It 110
Abstract 110
1 Introduction 110
2 The Life Story Project 111
2.1 The Life Story Process 112
2.2 Ethical Considerations 112
3 Maria 113
3.1 Maria’s Wartime Story 113
4 Antonella 114
4.1 Antonella’s Family Story 114
5 My Current Research: The Linking Lives Through Care Study 115
5.1 Background to the Study 115
5.2 A More Inclusive Communication Environment 116
5.3 Different Ways of Knowing 117
6 Conclusion 117
References 117
10 Estonian Museums and People with Dementia: Experiences and Challenges 119
Abstract 119
1 Introduction 119
2 Materials and Methods 121
3 Estonian Museums and Aging Adults 122
4 Museum Staff Experience with People with Dementia 123
5 Museum Staff’s Training Possibilities and Potential Partners 124
6 Museums’ Challenges: Cultural Policy and Financial Resources 126
References 127
11 Co-creating Design Opportunities for Social Technology in the Context of Dementia 129
Abstract 129
1 Introduction 130
1.1 Social Interaction Within the Context of Dementia 130
1.2 Design and HCI in Dementia Care 130
1.3 Technology and Design for Social Health 131
1.4 Dementia Dynamics in Design 131
2 Method 132
2.1 Social Interaction Within the Context of Dementia 132
2.2 Participants and Setting 132
2.3 Ethics 134
2.4 Data Collection and Analysis 135
3 Results 135
3.1 Social Needs of People with Dementia that Live Self-reliant 135
3.2 Barriers in Engaging in Social Interactions or Activities 136
3.3 Strategies Used by People with Dementia and Their Families to Mitigate the Impact of the Condition on Social Interactions 137
3.4 Difficulties in Using Existing Social Technologies 138
3.5 Initiative 139
4 Discussion 139
4.1 Design Considerations for Social Technology 139
4.1.1 Compensating for Internal and External Barriers Experienced by People with Dementia Through Design 139
4.1.2 Enhancing Agency Through Social and Physical Environment 140
4.1.3 Learning from Previous Experiences with Existing Social Technologies 140
4.2 Recommendations for Future Research in Social Technology for People with Dementia 141
4.2.1 Embracing the Importance of a Broader Social Context 141
4.2.2 Sharing Meaningful Activities 141
4.2.3 Incorporating Social Contact into the Everyday Routines 141
5 Conclusion 141
Acknowledgements 142
References 142