The Oxford Textbook of Palliative Social Work

Terry Altilio, MSW, LCSW, APHSW-C is a social worker with 34 years of direct practice experience in palliative care most recently in the Division of Palliative Care at Mt Sinai Beth Israel Medical Center. She teaches in graduate and post-masters social work programs, lectures nationally and internationally and authors publications which center the role of social work as a core discipline in the work of palliative care. Shirley Otis-Green, MSW, MA, ACSW, LCSW, OSW-CE, FNAP, FAOSW, is a palliative social work consultant, educator and researcher whose career focuses on transforming the delivery of care to more equitably address the symptoms and stress of serious illness. As Principal Investigator on studies with over $3.5 million in external funding, her work has been disseminated through more than 100 publications and 500 professional presentations. Shirley is a National Association of Social Workers Pioneer. John G. Cagle, MSW, PhD is an Associate Professor at the University of Maryland School of Social Work. His research has been supported by both public and private entities, including the University of Maryland School of Social Work Financial Social Work Initiative, the Hospice Foundation of America, the National Palliative Care Research Center, the John A. Hartford Foundation, the National Institute on Aging, the Agency for Healthcare Research and Quality, the National Hospice and Palliative Care Organization, and the Foundation for Care at the End of Life.

Contents
Forewords
Susan Blacker
Betty R. Ferrell
Kathleen M. Foley
George Handzo
Matthew J. Loscalzo
Diane E. Meier
Russell K. Portenoy
Preface
Acknowledgments
Contributors

I. Converging Contexts of Care

1. Centering the Lens of Social Justice
Eucharia Borden, Meagan Lyon Leimena, and Bridget Sumser
2. Health Equity in Palliative Care
Tessa Jones, Frances Nedjat-Haiem, and Karen Bullock
3. The Importance and Impact of Culture in Palliative Care
Todd D. Becker and John G. Cagle
4. Spirituality and Social Work Practice in Palliative Care
Dona J. Reese, Holly Nelson-Becker, and Ann M. Callahan
5. The Power of Language: Inviting Attention and Intention to Word Choice
Terry Altilio and Anne Kelemen

II. Historical Context-Bringing History Forward

6. Guess Who's Coming to Dinner? The Evolving Identity of Palliative Social Workers
Philip C. Higgins
7. Social Work and Palliative Care-The Early History
Dame Cicely Saunders
8. Palliative Social Work: An Historical Perspective
Bernice Catherine Harper

III. Collaborative Contexts

9. A Commitment to Collaborate: Challenges and Opportunities
Jill Farabelli and Vickie Leff
10. Walking across to Collaboration
Terry Altilio

IV. Person-Centered, Family-Focused Practice

11. Interventions to Support Children and Adolescents during Parental Illness
Katie Aliberti
12. Social Work in Pediatric Palliative Care
Barbara L. Jones, Stacy S. Remke, Rachel Carnahan-Metzger, and Farya Phillips
13. Adolescents and Young Adults Living with Serious Illness
Christabel K. Cheung and Lori Wiener
14. LGBTQ Patient Palliative Care: A Queery into Quality of Life
Charlie Blotner and Danae Dotolo
15. Beyond Vulnerability: Enhancing Agency and Adapting Systems
Sarah Gehlert and Teresa Moro
16. A House Is Not a Home: Palliative Care with People Experiencing Homelessness
Adam Schoenfarber and Pamela Adams
17. Dying in a Foreign Land
Iraida V. Carrion
18. Palliative Care for Veterans
Louisa Daratsos and Alba Lopez
19. Palliative Social Work with Older Adults and Their Families
Deborah Waldrop, Mercedes Bern-Klug, John G. Cagle, and Daniel S. Gardner

V. Person-Centered, Family-Focused Practice across Diagnoses

20. Person-Centered Practice in an Expanding Palliative Care Landscape
Chris Onderdonk
21. Palliative Social Work and Heart Failure
Arden O'Donnell and Tracy Ng
22. The Collaboration of Palliative Care and Oncology Social Work
Annabelle Bitter and Malory Lee
23. Dementia: Challenges and Opportunities across the Trajectory of Care
Abigail Nathanson and Abigail L. Latimer
24. Palliative Care in Chronic Kidney Disease
Elizabeth B. Anderson and Teri Browne
25. Amyotrophic Lateral Sclerosis and Neurologic Disease: The Role for Palliative Social Work
Judith Wood Mintz
26. Palliative Care during the COVID-19 Pandemic: Opportunities for Growth in the Face of Loss and Isolation
Carina Oltmann and Sheri Mila Gerson
27. Clinical Trials and the Role of Social Work
Karlynn BrintzenhofeSzoc

VI. Person-Centered, Family-Focused Practice across Settings

28. Palliative Care Consultation
Colleen M. Mulkerin, Katherine S. Lepak, and Sara Z. Morrison
29. Palliative Social Work in the Emergency Department
Robin Rudy Lawson and Maya Genovesi
30. Palliative Social Work in the Intensive Care Unit
Nina Laing
31. Surviving the Intensive Care Unit
Nina Laing and Anna Lewis
32. Palliative Care in the Perinatal and Neonatal Setting
Meagan Lyon Leimena and Rachel Rusch
33. Outpatient Palliative Care: Walking the Path Together
Anne Front
34. Home-Based Palliative Care
Kennan Moore, Christine Goldstein, and Jeanine Sanderoff
35. Social Work in Hospice Care
John G. Cagle and Rachel E. Brandon
36. Pediatric Hospice and Palliative Care: The Invaluable Role of Social Work
Stacy F. Orloff
37. Palliative and Hospice Care for Incarcerated Persons
Katharine P. Supiano and Jamey Boudreaux
38. Palliative Care in Long-Term Care Facilities
Mercedes Bern-Klug, Kara A. Carter, and Kelsey Simons
39. The Integration of Rehabilitative Therapies and Palliative Care
Jennifer Schutt
40. Palliative Social Work in Rural Communities
Karla T. Washington and Christine M. Lero
41. When Inner Cities Are Motivated by Compassion: The Role of Palliative Social Work
Richard B. Francoeur and Kenneth R. Sergiacomi

VII. Regional Voices from an International Perspective

42. International Palliative Social Work
Sheri Mila Gerson and Pam Firth
43. Palliative Social Work: An African Perspective
Jennifer Hunt and Valerie Maasdorp
44. It Takes Two to Tango: The Social Worker and the Family in Palliative Care
Elena D'Urbano
45. Australian Palliative Social Work
Patricia Collins, Julie Greathouse, Brendan Myhill, and Lauren Gough
46. Social Work and Palliative Care in Brazil
Lena Lansttai Bevilaqua Menezes and Leticia Andrade
47. Palliative Social Work in Canada
Susan Cadell and Harvey Bosma
48. Culture- Sensitive Palliative Social Work with Chinese Populations
Ming Ming Cheng and Cecilia Lai Wan Chan
49. Palliative Care: An Indian Perspective
Aarti Jagannathan, Srilatha Juvva, and Priya Treesa Thomas
50. Palliative Social Work in Israel
Tali Samson
51. Culture, Social Determinants of Health, and Palliative Care in the Pacific Basin
Lana Sue Ka'opua, Luana M. Y. Scanlan, and Yvonne Duhaylongsod Yim
52. Palliative Social Work in Romania: New Perspectives
Petrukta Anania and Csaba László Dégi
53. Palliative Social Work in Singapore
Cheng Wan Peh and Tzer Wee Ng
54. Palliative Social Work in Switzerland
Marc-Antoine Berthod and Laetitia Probst-Barroso
55. Palliative Social Work in the United Kingdom
Becky Chaddock, Sally Paul, and Anne Cullen

VIII. Interventions: Foundations of Palliative Social Work Practice

56. Merging Research and Clinical Practice
Tamara Cadet
57. Families and Family Conferencing
Iris Cohen Fineberg
58. Family Caregivers in Palliative Care: Social Work Roles and Responsibilities
Myra Glajchen and Christine Wilkins
59. Mental Health Risk in Palliative Care: The Social Work Role
Katherine Walsh and Susan Hedlund
60. Connections and Context: Thinking Critically about Strengths, Resilience, and Growth
Sheryl Lee Shermak and Susan Cadell
61. Advance Directives from a Social Work Perspective: Influence of Culture and Family Dynamics
Ramona Bullock-Johnson and Karen Bullock
62. The Social Work Role in Pain and Symptom Management
John G. Cagle and Terry Altilio
63. Sexual Expression and Physical Intimacy for Those with Serious Illness
Les Paul Gallo-Silver and Michael O. Weiner
64. Holding On and Letting Go: The Red Thread of Adult Grief and Bereavement
Susan Gerbino and Mary Raymer
65. The Integration of Technology: Benefits and Challenges
Katherine Campbell

IX. Interventions: Supporting Effective Palliative Social Work Practice

66. Interventions in Palliative Social Work Practice: The Intimate Connection with Assessment
Anne Kelemen and Stacy S. Remke
67. Acceptance and Commitment Therapy: Enhancing Psychological Flexibility in Serious Illness
Kayla Moore
68. Anticipatory Guidance
Stephanie Gasca and Rachel Schindel
69. Bibliotherapy
Nancy F. Cincotta and Tracy Moore
70. Cognitive- Behavioral Therapy in the Palliative Care Setting
Carina Oltmann
71. Care Coordination: Providing Quality Care, Reducing Costs and Unnecessary Utilization
Rebecca Cammy and Lauren LaTourette
72. Crisis Intervention
Esther Ammon
73. De-Escalating Highly Emotional or Potentially Violent Situations
Kathleen Hurley
74. The Doctor Within: Integrative Health, Social Work, and Palliative Care
Lucia McBee
75. Eye Movement Desensitization and Reprocessing for Pain Management
Yvette Colón
76. Building the Complete Father Intervention
Michael O. Weiner and Les Paul Gallo-Silver
77. Bereavement in the Beginning Phase of Life: Grief in Children and Their Families
Nancy F. Cincotta
78. Practice Considerations: Group Work
Nancy F. Cincotta
79. Meaning- Centered Therapies: Reconnecting with Life
Jordan Nichols
80. Medical Crisis Counseling
Clara Van Gerven
81. Motivational Interviewing: A Person-Centered Model of Communication
Jordan Nichols
82. The Power of Narratives and Storytelling
Cara L. Wallace
83. Using Psychoeducation to Empower Patients, Their Families, and Care Partners
Bessy Santiago
84. Single- Session and Solution- Focused Brief Therapy
Kasey Sinha
85. Structured Problem-Solving Interventions for Patients with Serious Illness and Their Care Partners
Rebecca Cammy and Lauren LaTourette
86. Supportive Counseling
William Michael Cooper
87. Trauma Therapies for Palliative Care Practice
Chelsea Brown
88. Using Schema Therapy to Meet Needs in Palliative Care
Lissa Parsonnet

X. Ethical Considerations

89. Ethical Considerations in Palliative Care: An Overview
Wendy B. Walters
90. Ethics in Medical Decision-Making: Exploring the Limits of Autonomy
Tracy Borgmeyer
91. Hospice and Palliative Social Work's Ethical Challenge: Aid in Dying in the United States
Tracy Schroeper, Jaime Goldberg, and Stephanie Wladkowski
92. Pediatric Palliative Care Ethics and Decision-Making
Nicholas Purol and Danielle Jonas
93. Technology and Ethics
Christina Bach

XI. Professional Issues

94. Advancing the Social Work Profession within Palliative Care
John G. Cagle
95. Navigating in Swampy Lowlands: A Relational Approach to Practice-Based Learning in Palliative Care
David M. Browning and Susan Gerbino
96. The Influence of Policy on End-of-Life and Palliative Care
Nancy Kusmaul
97. The Evolution of Advanced Certification for Palliative and Hospice Social Workers
Barbara Anderson Head and Alyssa Ashlyn Middleton
98. Supervision and Mentoring for Social Workers in Palliative and End-of-Life Care
Cathy Berkman, Carolyn Genereux, and Anne Front
99. Professional Self-Care, Resilience, and Well-Being
Colleen M. Mulkerin
100. Self-Care Practice Wisdom: A Letter to My Younger Self
Kerry Cox Irish
101. Leadership in Palliative Social Work
Cathy Berkman, Grace Christ, and Allison Shukraft
102. Professionalism: Making Connections, Enhancing Knowledge, and Building Leadership
Ellen L. Csikai, Barbara Jones, and Kendra D. Koch
103. Building a Lasting Legacy: Reflections on Transformative Professionalism
Shirley Otis-Green

Epilogues.
Terry Altilio.
Rachel E. Brandon.
John G. Cagle.
Shirley Otis-Green.

Index