Patient-Centred IVF - Trudie Gerrits

Patient-Centred IVF

Bioethics and Care in a Dutch Clinic

(Autor)

Buch | Hardcover
372 Seiten
2016
Berghahn Books (Verlag)
978-1-78533-226-5 (ISBN)
133,40 inkl. MwSt
This book places the patient-centred practices of a single clinic in a national context where ARTs are highly regulated ('Dutch IVF') and examines how this form of medicine co-shapes the experiences, views and decisions of the women and men using these technologies.
Contemporary Dutch policy and legislation facilitate the use of high quality, accessible and affordable assisted reproductive technologies (ARTs) to all citizens in need of them, while at the same time setting some strict boundaries on their use in daily clinical practices. Through the ethnographic study of a single clinic in this national context, Patient-Centred IVF examines how this particular form of medicine, aiming to empower its patients, co-shapes the experiences, views and decisions of those using these technologies. Gerrits contends that to understand the use of reproductive technologies in practice and the complexity of processes of medicalization, we need to go beyond ‘easy assumptions’ about the hegemony of biomedicine and the expected impact of patient-centredness.

Trudie Gerrits is Assistant Professor in the Anthropology Department at the University of Amsterdam (UvA), Netherlands, where she is co-director of the Masters in Medical Anthropology and Sociology (MAS).

Acknowledgements

Abbreviations



Introduction





Medicalization and Persistence

Patient-Centred Medicine

Outline of the Book




Chapter 1. Studying ARTs: Theory, Context, the Clinic and Methods    





Understanding the Use of ARTs

Dutch Context – Families, Children and Childlessness

The Radboud Clinic

The Study



Chapter 2. ‘Dutch IVF’. Legislation, Guidelines and Health Insurances





Legislation and Guidelines

Health Insurance Coverage

Conclusion



Chapter 3. The Couples and their Quest for a Child





Social and Demographic Characteristics

Facing Fertility Problems: Diverse Points of Departure

Couples’ Quest for a Child: the Process

Complementary and Alternative Medicine

Adoption as a Last Resort

Conclusion



Chapter 4. Daily Practices in the Patient-Centred Clinic





Interpersonal Aspects of Care

Privacy (or Not)

Abundant Information

Psycho-Social Support and Empathy

Decision Making – Multiple  Dynamics

Conclusion



Chapter 5. Information and Interpretation. Risks and Rates





IVF Success Rates: What Do They Tell Us?

Risks: Facts and Perceptions

Beyond Facts – Uncertainty and Trust

Conclusion



Chapter 6. The Body and Visualizing Technologies





Gaining Insight in the Reproductive Body and its Flaws

Visualization of Reproduction through IVF

Case: Louise’s Diary

Trying Once More? Compelling Technology

Conclusion



Chapter 7. Gendered Suffering and Support





The Gendered and Unequal Burdens of IVF

Sharing the Grief of Loss after IVF

Essentializing Genetics and Gender Dynamics

Conclusion



Chapter 8. Bioethics in Practice





Multi-Disciplinary Ethics Meeting

Case: Woman Carrier of a Cancer Gene

Concerns in Context

Addressing Ethically Sensitive Requests

Conclusion



Chapter 9. Conclusion





Dutch IVF

Bioethics in Practice

Patient-Centred Practices

Gender Inequality and the Imperative of Genetics

Final Thoughts: Implications for the Field and Future Research



Appendices



Appendix I: Methods

Appendix II: Social and Demographic Background Data Of Study  Participants

Appendix III: Patients’ or Couples’ Characteristics or Situations Leading to Concerns among Clinic Staff and their Reasons for Withholding Treatment



Glossary

Reference list

Index

Erscheinungsdatum
Reihe/Serie Fertility, Reproduction and Sexuality: Social and Cultural Perspectives
Verlagsort Oxford
Sprache englisch
Maße 152 x 229 mm
Gewicht 667 g
Themenwelt Medizin / Pharmazie Medizinische Fachgebiete Gynäkologie / Geburtshilfe
Medizin / Pharmazie Medizinische Fachgebiete Medizinethik
Studium Querschnittsbereiche Geschichte / Ethik der Medizin
Naturwissenschaften Biologie Humanbiologie
Sozialwissenschaften Soziologie
ISBN-10 1-78533-226-0 / 1785332260
ISBN-13 978-1-78533-226-5 / 9781785332265
Zustand Neuware
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