The Troubled Helix

Social and Psychological Implications of the New Human Genetics

Theresa Marteau, Martin Richards (Herausgeber)

Buch | Hardcover

377 Seiten

1996
Cambridge University Press (Verlag)
978-0-521-46288-4 (ISBN)

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This wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from human genetics. This powerful new technology can be used to predict an individual's susceptibility to diseases with a genetic component, many of which are unfortunately still incurable.

This wide ranging and compelling account surveys the exciting opportunities and difficult problems which arise from human genetics. The availability of increasingly sophisticated information on our genetic make-up presents individuals, and society as a whole, with difficult decisions. Although it is hoped that these advances will ultimately lead the way to the effective treatment and screening for all diseases with a genetic component, at present many individuals are 'condemned' to a life sentence, in the knowledge that they, or their children, will suffer from an incurable genetic disease. This was the first book to attempt to explore and survey these issues from such a variety of perspectives: from personal accounts of individuals coping with the threat of genetic disease, from the viewpoint of clinicians and scientists, and from those concerned with psychosocial, legal and ethical aspects.

Preface. Part I. Personal Stories: 1. Daily life and the new genetics: some personal stories 1.2 Huntington's disease S. Wright, J. Madigan, Anon.; 1.3 Hereditary breast and ovarian cancer J. Zatz, E. Macke, Anon.; 1.4 Werdnig-Hoffman's syndrome A. Macaulay, H. Hearnshaw; 1.5 Sickle cell conditions M. France-Dawson, A. Mottoh; 1.6 Personal experiences of genetic diseases: a clinical geneticists' reaction P. S. Harper; Part II. Clinical Context: 2. The new genetics: a user's guide M. Pembrey; 3. Decision-making in the context of genetic risk S. Shiloh; 4. Genetic counselling: some issues of theory and practice S. Michie and T. Marteau; 5. Evaluating carrier testing: objectives and outcomes T. Marteau and E. Anionwu; 6. Psychosocial aspects of prenatal screening and diagnosis J. Green and H. Statham; 7. The genetic testing of children: a clinical perspective A. Clarke and F. Flinter; 8. Predictive genetic testing in children: paternalism or empiricism? S. Michie; Part III. Social Context: 9. The troubled helix: legal aspects of the new genetics D. Morgan; 10. Human pedigree and the 'best stock': from eugenics to genetics? J. Durant, A. Hansen and M. Bauer; 12. Families, kinship and genetics M. Richards; 13. Ethics of human genome analysis: some virtues and vices J. Wood-Harper and J. Harris; 14. Genetics and racism H. Bradby; 15. Predictive genetics: the cultural implications of supplying probable futures C. Davison; 16. The new genetics: a feminist view M. Stacey; 17. Afterword M. Richards and T. Marteau; Index.

Erscheint lt. Verlag	14.3.1996
Zusatzinfo	4 Tables, unspecified; 2 Halftones, unspecified; 11 Line drawings, unspecified
Verlagsort	Cambridge
Sprache	englisch
Maße	181 x 254 mm
Gewicht	839 g
Themenwelt	Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik
	Naturwissenschaften ► Biologie ► Humanbiologie
	Sozialwissenschaften ► Ethnologie
	Sozialwissenschaften ► Soziologie
ISBN-10	0-521-46288-6 / 0521462886
ISBN-13	978-0-521-46288-4 / 9780521462884
Zustand	Neuware