De-Sequencing

Dr. Dana Mahr is senior researcher and lecturer at the University of Geneva, Switzerland. Her research centers on how we make sense out of science, technology, and medicine from a comparative and interdisciplinary perspective. Martina von Arx, M.A. is a PhD candidate at the University of Geneva, Switzerland. She explores how health professionals and patients experience digital technologies as part of the current developments of personalized health in Switzerland.

1. Introduction.- Part I Science and Medicine.- 2. Personalised Medicine: Problems of translation into the human domain.- 3. Contemporary Future Parents: From tentative pregnancy and moral pioneers to educated moral gamblers.- Part II Philosophy of Biology.- 4. Developmental narratives.- 5. Epigenetics, responsiveness and embodiment.- 6. Space and time of developmental narratives.- Part III Societal Contexts.- 7. Data mining in systems medicine and the project of solidarity – the interface of genomics and society revisited.- 8. Experimenting with solidarity in biomedicine: from practice to prin-ciple?.- 9. The moral making of data rich personalised medicine.- Part IV Families.- 10. An ordering of letters: my own personal genome.- 11. Illness in the world of the genome.- 12. How personal is the genome? The shadow of genetic predictions.- Part V Individual Experiences.- 13. Lived genome phenomenology. Exploring the genetics of chronic inflammatory bowel diseases.- 14. Existential storytelling in a genomic world.