Case Studies in Ethics and HIV Research (eBook)

This important work takes as its subject one of medicine's most pressing arenas of ethical debate. There has been a consistent interest in ethical issues arising in the context of HIV research. Ongoing international and multi-site studies and the continuing search for an HIV vaccine continue to prompt examination of how this research is conducted. Also examined are how participants are engaged in the studies and the obligations of the researchers to individual participants and their communities during the course of and following the conclusion of the research. Each chapter of this book is authored primarily by one of the editors (secondarily by the other) and is accompanied by one to two case studies.

Dr. Loue is known internationally for HIV research with minority communities, as well as research ethics and epidemiology. Dr. Loue has written books focusing on Epidemiology, Disease Prevention, and Sexual Practices.

Earl Pike has been engaged in community-based HIV service and prevention program provision and management for over 20 years, and directs Ohio's largest HIV/AIDS service, education, and advocacy.

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This book represents the compilation of efforts by researchers across the country, each of whom is dedicated not only to the prevention and elimination of HIV infection, but also to the conduct of research according to the highest ethical pr- ciples. The authors of the case studies have graciously agreed to share their ex- riences in conducting research, which raised questions for them and will motivate us to further inquiry and examination. The views that are presented in this text are diverse and readers may or may not agree with the analyses of the editor-authors or the authors of the case studies. We do not aim for agreement among readers, but rather, the studied analysis of the ethical issues raised in the conduct of HIV research. We clearly emphasize the protection of the individuals participating in such research, as well as their communities, and view research not as an enterprise undertaken by researchers, but rather as a negotiated exchange between researchers, participants, and c- munities that also involves interplay with funding sources, ancillary partners, and governments.