Living and dying with dementia

Professor Neil Small has held posts at the Universities of York and Sheffield as well as at Bradford University. He is a social scientist with interests in health policy, chronic illness and end of life care. A more recent focus has been on the impact of ethnicity on patterns of health belief and practice. He is involved with a newly established birth cohort study, the Born in Bradford project. He is also a member of the International Work Group in Death, Dying and Bereavement, a group first set up in 1974, which now has members from 20 countries and for which membership is by invitation only. Dr Katherine Froggatt is Senior Lecturer at the International Observatory on End of Life Care at Lancaster University and is developing research around older people and palliative and supportive care. Her interests in care for older people and palliative care have led her to undertake several projects concerned with the provision of end of life care in care homes for older people. Murna Downs is Professor in Dementia Studies and Head of the Bradford Dementia Group at the University of Bradford. Her research interests focus on quality of life and quality of care for people with dementia and their families, with a particular emphasis on primary care, nursing home care and end of life care. The Bradford Dementia Group offers undergraduate and post graduate degrees in dementia studies, by distance learning. Murna is also Social Care Advisor to Alzheimer's Europe, a member of the Medical and Scientific Advisory Committee of the Alzheimer's Society, and has formerly been a member of the British Society of Gerontology Executive.

1. Introduction ; 2. The life-world: journeys with dementia ; 3. Developments in service provision ; 4. Self and autonomy ; 5. Quality of care and quality of life ; 6. The 'good death' and dementia ; 7. Looking forward