Management of Prader-Willi Syndrome

Foreword, Pam Eisen and Giorgio Fornasier * Preface, Janalee Heinemann * Contributors * Introduction * Louise Greenswag and Randell Alexander * Part I Diagnosis and Genetics * Chapter 1 Clinical Findings and Natural History of Prader-Willi Syndrome, Merlin G. Butler, Jeanne M. Hanchett, and Travis Thompson * Chapter 2 Diagnostic Criteria for Prader-Willi Syndrome, Shawn E. McCandless and Suzanne B. Cassidy * Chapter 3 Molecular Genetic Findings in Prader-Willi Syndrome, Karin Buiting and Bernhard Horsthemke * Chapter 4 Laboratory Testing for Prader-Willi Syndrome, Kristin G. Monaghan and Daniel L. Van Dyke * Part II Medical Physiology and Treatment * Chapter 5 Medical Considerations in Prader-Willi Syndrome, Urs Eiholzer and Phillip D. K. Lee * Chapter 6 Gastrointestinal System, Obesity, and Body Composition, Ann O. Scheimann, Phillip D. K. Lee, and Kenneth J. Ellis * Chapter 7 Growth Hormone and Prader-Willi Syndrome, Aaron L. Carrel, Phillip D. K. Lee, and Harriette R. Mogul * Part III Multidisciplinary Management * Chapter 8 Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome, Barbara Y. Whitman and Travis Thompson * Chapter 9 Speech and Language Disorders Associated with Prader-Willi Syndrome, Barbara A. Lewis * Chapter 10 Motor and Developmental Interventions, Toni Goelz * Chapter 11 Educational Considerations for Children with Prader-Willi Syndrome, Naomi Chedd, Karen Levine, and Robert H. Wharton * Chapter 12 Tools for Psychological and Behavioral Management, Barbara Y. Whitman and Kevin Jackson * Chapter 13 Educational and Social Issues for Adolescents with Prader-Willi Syndrome, Barbara J. Goff * Chapter 14 Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome, Ellie Kazemi and Robert M. Hodapp * Chapter 15 Vocational Training for People with Prader-Willi Syndrome, Steve Drago * Chapter 16 Residential Care for Adults with Prader-Willi Syndrome, Mary K. Ziccardi * Chapter 17 Inpatient CrisisIntervention for Persons with Prader-Willi Syndrome, Linda M. Gourash, James E. Hanchett, and Janice L. Forster * Chapter 18 Family Support and Advocacy—A Role for the Social Worker, Barbara Y. Whitman * Chapter 19 A National Approach to Crisis Intervention and Advocacy, David A. Wyatt * Chapter 20 Advocacy Issues: School Discipline and Expulsion, Barbara J. Goff * Chapter 21 Advocacy Issues: Sexuality, Janalee Heinemann, David A. Wyatt, and Barbara J. Goff * Appendices * A First Published Report of Prader-Willi Syndrome (in German), Andrea Prader, Alexis Labhart, and Heinrich Willi * English Translation, Commentary, and Historical Photographs, Urs Eiholzer, Editor * B A Comprehensive Team Approach to the Management of Prader-Willi Syndrome, Urs Eiholzer, Editor * C Growth Charts of Individuals with Prader-Willi Syndrome, Merlin G. Butler and F. John Meaney, United States * Berthold P. Hauffa et al., Germany, Toshiro Nagai et al., Japan * D Eligibility for U.S. Social Security and SSI Benefits for Individuals with Prader-Willi Syndrome, Barbara R. Silverstone * E The International Prader-Willi Syndrome Organization (IPWSO) * F The Prader-Willi Syndrome Association (USA) * Index