Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine

Virginia M. Miori, Daniel J. Miori, Flavia Burton, Catherine G. Cardamone (Herausgeber)

Buch | Hardcover

176 Seiten

2023
Emerald Publishing Limited (Verlag)
978-1-80262-310-9 (ISBN)

Artikel merken

Though algorithms are chosen to eliminate bias in the Learning Health Systems (LHS) that support medical decision making, we are left with unconscious bias present in data due to lack of representation for marginalized populations, particularly in palliative care. Medical practitioners often lack historical foundations for decision making for patients in underrepresented populations, which lead to palliative patients being subjected to uneven quality of care and an absence of treatment goals due to a lack of advocacy and other challenges.

Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine reviews the ethical foundations that drive our approach, data collection (public data, private data and data privacy), data stratification methodologies to support marginalized and intersectional populations, analysis techniques, algorithmic development to maintain privacy, survival analysis, result interpretation, LHS development, and LHS implementation. These methodologies address the HIPAA Privacy Rule, which clearly establishes the standard to protect digitally held health care data.

Informing both research and practice, Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine brings attention to an important issue that lies at the intersection of medicine, science, and digital technology and communication.

Virginia M. Miori is a Full Professor and Chair of the Decision and System Sciences Department in the Haub School of Business at Saint Joseph's University, USA. Daniel J. Miori, MS PA-C, is a physician assistant and author. He works on the Palliative and Supportive Care team and is on the ethics committee at Erie County Medical Center in Buffalo, NY, USA. Flavia Burton is Assistant Professor of Practice with the Department of Decision and System Sciences (DSS) in the Haub School of Business at Saint Joseph's University, USA. Catherine G. Cardamone is Adjunct Professor with the Department of Decision and System Sciences (DSS) in the Haub School of Business at Saint Joseph's University, USA.

Chapter 1. Making the Case; Daniel J. Miori

Chapter 2. Privacy and Learning Health Systems; Daniel J. Miori

Chapter 3. Shaping the Continuum of Care Through Public Policy and Data; Thomas R. Martin

Chapter 4. Public Data Sources: Cleaning and Wrangling; Virginia M Miori

Chapter 5. Public Data Sources: Sizing the Palliative Population; Virginia M Miori

Chapter 6. Private Data Sources, Data Privacy and Data Simulations for Palliative LHS; Virginia M Miori

Chapter 7. Synthea Descriptive Analysis; Virginia M Miori

Chapter 8. Palliative LHS Analysis; Virginia M Miori

Chapter 9. Data Repository Design for Public Data Analysis; Brian W. Segulin

Chapter 10. Palliative LHS Development and API to Ensure Data Privacy; Brian W. Segulin

Chapter 11. Learning Health Systems Ethics Review; Daniel J. Miori

Erscheinungsdatum	25.10.2023
Reihe/Serie	Studies in Media and Communications
Verlagsort	Bingley
Sprache	englisch
Maße	152 x 229 mm
Gewicht	381 g
Themenwelt	Medizin / Pharmazie ► Medizinische Fachgebiete ► Medizinethik
	Studium ► Querschnittsbereiche ► Geschichte / Ethik der Medizin
	Sozialwissenschaften ► Kommunikation / Medien ► Medienwissenschaft
	Sozialwissenschaften ► Soziologie
ISBN-10	1-80262-310-8 / 1802623108
ISBN-13	978-1-80262-310-9 / 9781802623109
Zustand	Neuware