People with Dementia at the Heart of Research

Rachael Litherland (Author) Rachael Litherland co-founded Innovations in Dementia with Nada Savitch in 2007. She has a background in psychology and advocacy and is particularly interested in ways of working that enhance people's day to day lives. She especially enjoys working with people with dementia in care homes, having begun her working life managing an advocacy project for care home residents with dementia in London. Rachael has focused for the past few years on involvement methods and has seen a lot of change from the early 2000s when she set up an involvement programme for the Alzheimer's Society. Philly Hare (Author) Philly Hare became a Director of Innovations in Dementia in January 2017. She was previously a Programme Manager at Joseph Rowntree Foundation, overseeing their major programme Dementia without Walls. She is also an Exchange Fellow at the University of Edinburgh and Honorary Visiting Researcher at the University of Bradford. Philly's particular interests are the empowerment and inclusion of people with dementia, and the application of research evidence to practice. As a qualified social worker, Philly has over 30 years' experience within the NHS, Local Authorities and the voluntary sector in many areas of adult social care.

Foreword - by Dr David Crepaz-Keay



Acknowledgments


1
The Background to Dementia Enquirers


2
An Overview of the Programme


3
The Dementia Enquirers Projects


4
Opening up the World of Research


5
Tacking the Complexities of Research Ethics


6
What does this all mean for DEEP Group Members and Facilitators?


7
What does this all mean for the Academic Community?


8
Towards a New Model of Co-research - 'the Driving Seat'


9
Reflections and Key Messages


10
Our Manifesto


Appendix 1
List of Dementia Enquirers Projects

Appendix 2
Case Studies

Appendix 3
Conference and Seminar Presentations