Palliative Care in Hematologic Malignancies and Serious Blood Disorders

lt;p>Christina K. Ullrich, MD, MPH

Clinical Director, Pediatric Advanced Care Team (Pediatric Palliative Care)

Institute Physician, Pediatric Hematology/Oncology and Pediatric

Palliative Care, Dana-Farber Cancer Institute

Boston Children's Hospital

Associate Professor in Pediatrics, Harvard Medical School

Boston, MA

USA

Eric Roeland, MD, FAAHPM

Associate Professor, Oregon Health and Science University

Medical Oncology, Palliative Care

Dr.  Ullrich is an Institute Physician in Pediatric Palliative Care and Pediatric Hematology/Oncology and Hematopoietic Stem Cell Transplant (HSCT) at Dana Farber Cancer Institute and Boston Children's Hospital and an Associate Professor in Pediatrics at Harvard Medical School. Having completed fellowships in both areas, as well as a health services research fellowship, she is board certified in both the subspecialties of hospice and palliative medicine and pediatric hematology/oncology.

Her main career aim is to optimize the wellbeing of children with serious illness.  Through a focus on children who undergo HSCT, she aims to integrate the principles of palliative care into the care of children undergoing intense, cure-oriented treatment such as HSCT through a variety of clinical, educational and research undertakings. She has written some of the first papers on palliative care in HSCT (adult or pediatric), including one demonstrating differences in end of life outcomes associated with palliative care consultation.  She is also conducting one of the largest studies of symptoms and QOL as reported by children themselves in this population. She currently serves as Vice Chair of the American Society of Transplantation and Cellular Therapies Special Interest Group for Palliative Care

Dr. Ullrich is the Clinical Director of the Pediatric Advanced Care Team, an expert and dedicated interdisciplinary team caring for children with a wide range of serious or advanced conditions at Boston Children's Hospital and Dana Farber Cancer Institute.  She can't imagine more rewarding or fulfilling work.

Eric Roeland, MD, FAAHPM, is an Associate Professor of Medical Oncology and Palliative Care serving as the Director of the Symptom Science research program at the Oregon Health and Science University, Knight Cancer Institute. Dr. Roeland earned his medical degree at the University of Colorado Health Sciences Center. He completed his internal medicine training and hematology and oncology fellowship at the University of California San Diego and a palliative medicine fellowship at San Diego Hospice and The Institute for Palliative Medicine. He is board-certified in medical oncology and hospice and palliative medicine.-

Preface.- 1. Introduction.- SECTION 1: HEMATOLOGY.- 2. Hematologic Malignancies.- 3. Hematopoietic Cell Transplantation.- 4. Serious Blood Disorders: A Focus on Sickle Cell Disease and Hemophilia.- 5. Cellular Therapies: A Description of the Types of Existing Cellular Therapies and Associated Toxicities.- SECTION II: PALLIATIVE CARE.- 6. Palliative Care Approach for Patients with Hematologic Malignancies and Other Serious Blood Disorders.- 7. Hematology/Oncology and Palliative Care Collaboration.- 8. Palliative Care Integration in the Outpatient Setting.- SECTION III: ISSUES IN PALLIATIVE CARE.- 9. Communication throughout the Illness Trajectory.- 10. Decision-Making Involvement throughout the Illness Trajectory.- 11. Advance Care Planning in Hematologic Malignancies and Other Serious Blood Disorders.- 12. Measuring Quality of Life and Health-Related Quality of Life.- 13. Pain Syndromes of Hematologic Malignancies.- 14. Symptoms in Advanced Hematologic Malignancies and Other SeriousHematologic Conditions.- 15. Rehabilitation Medicine.- 16. Psychosocial Considerations and Assessment of Patients with Hematological Malignancies and Serious Blood Disorder.- 17. Multicultural and Spiritual Considerations.- 18. Ethical Considerations in Palliative Care.- 19. State of the Science: Advancing the Field through Research in Palliative Hematologic Malignancy.- SECTION IV: SPECIAL POPULATIONS.- 20. Palliative Care for Special Populations: Pediatrics.- 21. Palliative Care for Adolescents and Young Adults (AYAs).- 22. Caregivers of Patients with Hematologic Malignancies.- SECTION V: CARE OF PATIENTS FACING END OF LIFE.- 23. End-of-Life Considerations.- 24. Care of the Imminently Dying Patient with a Hematologic Malignancy or Serious Blood Disorders.- 25. Bereavement in Hematologic Malignancies and Serious Blood Disorders.