Public Policy in ALS/MND Care -

Public Policy in ALS/MND Care

An International Perspective
Buch | Softcover
347 Seiten
2021 | 1st ed. 2021
Springer Verlag, Singapore
978-981-15-5842-9 (ISBN)
117,69 inkl. MwSt
This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. 

Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida.  Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences. David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research.

1. Introduction to Public Policy of ALS/MND.- 2. Public Policy in MND Care: The Australian Perspective.- 3. Public Policy in ALS/MND Care: The Belgian Perspective.- 4. Amyotrophic Lateral Sclerosis in Brazil.- 5. Public Policy of ALS in Canada.- 6. Public Policy for Amyotrophic Lateral Sclerosis in China.- 7. German Perspective on ALS/MND Policy .- 8. Living and Dying with ALS/MND in India: Public Policy and Private Realities.- 9. The Experience of Amyotrophic Lateral Sclerosis in Ireland.- 10. Public Policy in ALS Care in Israel.- 11. Public Policy in ALS Care: The Italian Situation.- 12. ALS Policy: A Japanese Perspective.- 13. ALS Policy in Mexico.- 14. Public Policy of MND: A Nigerian Perspective.- 15. Public Policy of ALS: A Pakistani Perspective.- 16. Public Policy in ALS Care: The Polish Perspective.- 17. ALS Policy: A Russian Perspective.- 18. Public Policy in ALS/MND Care: South African Perspective.- 19. Public Policy of ALS: South Korea.- 20. Amyotrophic Lateral Sclerosis Care in Tunisia.- 21. Public Policy in MND Care: The United Kingdom.- 22. ALS Public Policy in the United States.- 23. Conclusions: What We Can Learn from the Country Perspectives.

Erscheinungsdatum
Zusatzinfo 5 Illustrations, black and white; XXXI, 347 p. 5 illus.
Verlagsort Singapore
Sprache englisch
Maße 148 x 210 mm
Themenwelt Medizin / Pharmazie Gesundheitswesen
Medizin / Pharmazie Pflege
Sozialwissenschaften Politik / Verwaltung Staat / Verwaltung
Schlagworte ALS/MND advocacy groups • ALS/MND and Government Action • ALS/MND and the private sector • ALS/MND and the public sector • ALS/MND institutional care • ALS/MND Organizations • ALS/MND palliative and hospice care • ALS/MND Policy • Assistive technologies for ALS/MND • Caregivers and ALS/MND • Financial and ALS/MND • Genetic testing and ALS/MND • Governmental agencies and ALS/MND • Governmental Aid, ALS/MND and Caregivers • Legal status on suicide/euthanasia • Legislation for ALS/MND • Media perceptions of ALS/MND • physician-assisted suicide
ISBN-10 981-15-5842-6 / 9811558426
ISBN-13 978-981-15-5842-9 / 9789811558429
Zustand Neuware
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