Public Policy in ALS/MND Care -

Public Policy in ALS/MND Care (eBook)

An International Perspective
eBook Download: PDF
2020 | 1st ed. 2021
XXXI, 347 Seiten
Springer Singapore (Verlag)
978-981-15-5840-5 (ISBN)
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This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. 




Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida. 

Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences.

David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research.


This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. 
Erscheint lt. Verlag 27.11.2020
Zusatzinfo XXXI, 347 p. 5 illus.
Sprache englisch
Themenwelt Medizin / Pharmazie Gesundheitswesen
Medizin / Pharmazie Pflege
Sozialwissenschaften Politik / Verwaltung Staat / Verwaltung
Schlagworte ALS/MND advocacy groups • ALS/MND and Government Action • ALS/MND and the private sector • ALS/MND and the public sector • ALS/MND institutional care • ALS/MND Organizations • ALS/MND palliative and hospice care • ALS/MND Policy • Assistive technologies for ALS/MND • Caregivers and ALS/MND • Financial and ALS/MND • Genetic testing and ALS/MND • Governmental agencies and ALS/MND • Governmental Aid, ALS/MND and Caregivers • Legal status on suicide/euthanasia • Legislation for ALS/MND • Media perceptions of ALS/MND • physician-assisted suicide
ISBN-10 981-15-5840-X / 981155840X
ISBN-13 978-981-15-5840-5 / 9789811558405
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