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Handbook of Perinatal and Neonatal Palliative Care (eBook)

A Guide for Nurses, Physicians, and Other Health Professionals

Rana Limbo, Charlotte Wool, Brian Carter (Herausgeber)

eBook Download: EPUB

2019
400 Seiten
Springer Publishing Company (Verlag)
978-0-8261-3842-2 (ISBN)

Lese- und Medienproben

Ebook-Leseprobe (EPUB)

The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care.Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings.Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words.Key Features:Addresses a growing need for specific provider resources in neonatal palliative careCovers the clinical and emotional aspects of palliative care for babies and their familiesAbundant resources for effective and compassionate family-centered careCase studies with critical thinking questionsAccompanying video clips of healthcare and family interactionsSupplemental image bank included

Contributors

Foreword

Preface

Acknowledgments

About the Art and Artists

SECTION 1: UNDERSTANDING PALLIATIVE CARE

1. Advancing Palliative Care to Perinatal and Neonatal Settings

2. Neonatal and Perinatal Palliative Care Services and Programs

3. Creating Seamlessness in Palliative Care Services

SECTION 2: CARING FOR THE WHOLE FAMILY IN PALLIATIVE CARE

4. Comfort in Perinatal and Neonatal Palliative Care: An Innovative Plan of Care Focused on Relational Elements

5. Suspending Judgment: Being With and Knowing the Family

6. Helping Siblings Connect, Relate, and Say Goodbye

7. Barriers to Referring Patients for Perinatal Palliative Care

SECTION 3: PLANNING AND DECISION-MAKING

8. Communicating Devastating News

9. Grief and Memories Begin With Diagnosis

10. Anticipatory Guidance: Birth and Advance Care Planning

11. Difficulty in Predicting Survival: Genetics and Genetic Counseling

12. “Compatible With Love”: Qualitative Analysis of Decision-Making Rationale of Parents Who Continue a Pregnancy Affected by a Life-Limiting Fetal Condition

13. Perinatal Regoaling in the Face of Serious Illness: Hopeful Thinking, Good-Parent Beliefs, and Uncertainty

14. Building and Sustaining Relationships During Pregnancy

SECTION 4: PHYSICAL ASPECTS OF PALLIATIVE CARE: DIAGNOSIS, TREATMENT, AND OUTCOMES

15. Attending to Pain and Suffering in Palliative Care

16. Managing Pain and Discomfort in the Mother

17. Perinatal Palliative Care in the Context of Fetal or Neonatal Surgery

18. Palliative Care at the Time of Unexpected Premature Delivery

19. Compassionate Extubation and Withdrawal of Life-Sustaining Therapies

SECTION 5: SUPPORTING FAMILIES AND CARE PROVIDERS THROUGH THE NUANCES OF PALLIATIVE CARE

20. Lactation and Breastfeeding in the Context of Perinatal Palliative Care

21. Ten Ethical Principles for Neonatal Palliative Care

22. Spirituality: The Effects of Another’s Pain and Suffering on Care Providers

23. Assessing Perinatal Grief Intensity in the Palliative Care Setting

24. Strategies to Honor Professional Well-Being in Perinatal and Neonatal Care

Appendix: National Palliative Care Organizations and Resources

Index

Erscheint lt. Verlag	15.12.2019
Sprache	englisch
Themenwelt	Medizin / Pharmazie ► Gesundheitsfachberufe ► Hebamme / Entbindungspfleger
	Medizin / Pharmazie ► Medizinische Fachgebiete ► Gynäkologie / Geburtshilfe
	Medizin / Pharmazie ► Medizinische Fachgebiete ► Pädiatrie
	Medizin / Pharmazie ► Medizinische Fachgebiete ► Palliativmedizin
	Pflege ► Fachpflege ► Anästhesie / Intensivmedizin
	Medizin / Pharmazie ► Pflege ► Kinderkrankenpflege
Schlagworte	advance care planning,bereavement,decision making,grief,home care,maternal-fetal medicine,neonates,palliative care,perinatal care,quality of care
ISBN-10	0-8261-3842-X / 082613842X
ISBN-13	978-0-8261-3842-2 / 9780826138422

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