Nutrition and Neurodisability

Peter Sullivan trained in Universities in Manchester, Cambridge and London and has worked in India, The Gambia and Hong Kong. He was the first David Baum Fellow of the Royal College of Paediatrics and Child Health and also past-President of the Commonwealth Association of Paediatric Gastroenterology and Nutrition. He is currently Associate Dean of the Medical Sciences Division of Oxford University with responsibility for postgraduate clinical medical training. His research interests focus on the gastrointestinal and feeding problems of children with neurodisability in which subject he is actively engaged in research and on which he has produced numerous scientific papers and textbooks. Guro Anderson established the Cerebral Palsy Register of Norway, which she currently leads, and the Nutritional team at the Habilitation Center at Vestfold Hospital Trust, where she is a senior consultant. Guro was also a Task Coordinator for Task 5.3 Growth and Nutrition Variations in general outcomes of health care for children with cerebral palsy across Europe: growth and nutrition; a study by the Surveillance of Cerebral Palsy in Europe. Morag Andrew trained in Paediatric Neurodisability in London (Great Ormond Street Hospital for Children) and Oxford, where she developed her interests in neurological feeding disorders and nutrition. She was awarded a DPhil (University of Oxford) for her work on nutritional intervention following perinatal brain injury and has published several original research papers from this work. She was one of the first British Academy of Childhood Disability-Castang fellows between 2017-2019. Her research interests include nutrition in neurodisability as well as neurodisability interventions more broadly.

Author Appointments vii

Foreword ix

Preface xi

1 The Normal Development of Oral Motor Function: Anatomy and Physiology 1
Morag J Andrew

2 ‘When Things Go Wrong’: Causes and Assessment of Oral Sensorimotor Dysfunction 7
Diane Sellers

3 Oral Health and Sialorrhea 29
Amy Hughes, Isabelle Chase and Laurie Glader

4 Gastrointestinal Problems in Children with Neurodisability: Causes, Symptoms and Management 47
Ilse Broekaert

5 Consequences of Nutritional Impairment 69
Jessie M Hulst

6 Assessment of Nutritional State: Growth, Anthropometry and Body Composition 87
Jane Hardy and Hayley Kuter

7 Assessment of Nutritional State: Dietetic, Energy and Macronutrients 109
Jacqueline L Walker and Kristie L Bell

8 Assessment of Nutritional State: Micronutrient Deficiencies and Bone Health 131
Heidi H Kecskemethy and Steven J Bachrach

9 Feeding and Nutritional Management Strategies 149
Kristie L Bell, Katherine A Benfer and Kelly A Weir

10 Enteral Tube Feeding: Practical and Ethical Considerations 169
Peter B Sullivan

Conclusion 183
Guro L Andersen

Index 187