100 Questions & Answers About Muscular Dystrophy
Jones and Bartlett Publishers, Inc (Verlag)
978-1-284-20166-6 (ISBN)
According to the National Organization for Rare Disorders (NORD), over 250,000 people are affected by muscular dystrophies (MD) in the United States, including Duchenne muscular dystrophy (DMD), facioscapulohumeral muscular dystrophy, Myotonic muscular dystrophy (DM), Facioscapular humeral muscular dystrophy (FSHD) and Limb girdle muscular dystrophy (LGMD) among many others. No one with MD needs to be alone in their fight against this rare disorder. That's where this book and the authoritative information within can help.
100 Questions & Answers About Muscular Dystrophy offers essential and practical guidance. This unique book provides both doctor and patient perspectives and offers answers to the most asked questions by patients and their loved ones. Is it safe to exercise? How do I find a clinical trial in which to participate? What are some things to remember when going to the emergency department? What can I do about fatigue?
Along with the answers to these and other questions, this book provides information on diagnosis, treatment, living with MD, new therapeutic options, and more. Written by a leading expert on the topic with more than 20 years experience caring for patients with MD, 100 Questions & Answers About Muscular Dystrophy is an easy-to-read book and must-have resource for those living with MD, as well as their loved ones.
Kathryn R. Wagner, MD, PhD is the Director of the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute and Professor of Neurology and Neuroscience at the Johns Hopkins School of Medicine. She received her BS from Yale University and her MD and PhD from Johns Hopkins. Dr. Wagner cares for children and adults with all forms of muscular dystrophy in an interdisciplinary clinic, addressing the multiple medical and social issues affecting individuals and families. Her research work focuses on muscle regeneration and therapeutic development for the muscular dystrophies. She has authored over 100 scientific articles and book chapters. Dr. Wagner is a scientific advisor for the FSHD Society, Parent Project Muscular Dystrophy, and TREAT-NMD Advisory Committee for Therapeutics and an elected member of the American Society for Clinical Investigation.
| Erscheinungsdatum | 10.05.2021 |
|---|---|
| Verlagsort | Sudbury |
| Sprache | englisch |
| Themenwelt | Medizin / Pharmazie ► Medizinische Fachgebiete ► Medizinethik |
| Medizin / Pharmazie ► Pflege | |
| ISBN-10 | 1-284-20166-X / 128420166X |
| ISBN-13 | 978-1-284-20166-6 / 9781284201666 |
| Zustand | Neuware |
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