Being Participatory: Researching with Children and Young People

Professor Imelda Coyne is a Children's nurse who cares passionately about children's rights and welfare. In her current position as Professor of Children's Nursing (Trinity College Dublin Ireland) she leads a team of lecturers and researchers in the delivery of high quality teaching, clinical practice, and research. The central theme underpinning her programme of research is valuing children's and young people's voices and promoting their participation in matters that affect their lives. Programme of research includes: participation and shared decision-making, triadic decision-making; family centred care; chronic illness management and transition from child to adult services. She has over 200 publications in peer-reviewed journals and have written/co authored two children's nursing textbooks. She presented widely (more than 150 papers) including many invited keynote presentations and delivered workshops internationally. She is a member of the European Academy of Nursing Science Board (EANS) and three editorial boards: Journal of Clinical Nursing; Nursing Children and Young People; and Nursing & Health Sciences. She is a reviewer for 19 peer reviewed journals and EU grants, Member of the Nuffield Council on Bioethics Working Party on children and clinical research, and appointed Ambassador for the Participation Hub for the Irish Government. Professor Bernie Carter is a Children's nurse who has a long term commitment to participation and the importance of participation to the ways in which practitioners and researchers work with children, young people and their families. She works at Edge Hill University where she contributes to and leads the rapidly growing Children, Young People and Families Research Group. She is the Director of the Children's Nursing Research Unit (CNRU) at Alder Hey Children's NHS Foundation Trust. The CNRU fosters a supportive environment in which clinical nurses and allied health professionals can develop and undertake robust research studies, implement research findings and establish integrated clinical-academic careers. She is the Director of 'Circle', an international collaboration of children's nurses whose mission is 'making things better for children and families' through research. Key partners in 'Circle' are based in child health research units in New Zealand and Tasmania, offering fantastic opportunities for joint research and scholarship.She published over 120 peer-reviewed articles and more than 60 editorials. She wrote or edited books on pain, researching with children and children's nursing and contributed chapters to books; a good proportion of this work is highly relevant to the areas covered by the book proposed in this outline. She has been the Editor-in-Chief for the Journal of Child Health Care (Sage Publications) for 20 years. She is a Fellow of the Royal College of Nursing and a Fellow of the Higher Education Academy.

Dedication.- Preface.- Table of content.- Chapter 1. Participatory research in the past, present and future.- Chapter 2. Principles of participatory research.- Chapter 3. Ethical issues in participatory research with children and young people.- Chapter 4. Being participatory.- Chapter 5. Being participatory through play.- Chapter 6. Being participatory through interviews.- Chapter 7. Being participatory through photo based images.- Chapter 8. Being participatory through the use of app-based research tools.- Chapter 9. Participatory research: does it genuinely extend the sphere of children and young people's participation?