Guidelines for Nursing Excellence in the Care of Children, Youth, and Families

Cecily L. Betz, PhD, RN, FAAN, is professor of clinical pediatrics in the University of Southern California (USC) Keck School of Medicine, Department of Pediatrics. Dr. Betz serves as the nursing director and research director of the USC University Center for Excellence in Developmental Disabilities at Children’s Hospital Los Angeles (CHLA). Marilyn J. Krajicek, EdD, RN, FAAN, is professor of nursing at University of Colorado College of Nursing Anschutz Medical Center and associate clinical professor, Department of Pediatrics, School of Medicine. Martha Craft-Rosenberg, PhD, RN, FAAN, is professor emeritus at the University of Iowa College of Nursing.

Contributors


Foreword by Karen Cox, PhD, RN, FAAN


Preface


1 Children and Youth Have an Identified Health Care Home (Medical Home)


Barbara Velsor-Friedrich and Patricia Vernal Burkhart


2 Children, Youth, and Families Receive Care That Supports Growth and Development


Leigh Small and Terri H. Lipman


3 Children, Youth, Families, and Health Care Providers Are Partners in Decisions, Planning, and Delivery of Care, Including Appropriate Community Services


Janet A. Deatrick and Roberta S. Rehm


4 Cultural Values, Beliefs, and Preferences Are Integral to Family-Centered Care


Mary Lou de Leon Siantz, Jill F. Kilanowski, and Tami L. Thomas


5 Family Concerns Are Recognized as a Priority, and Family Strengths Are Respected and Supported in the Care of Children and Youth


Linda A. Lewandowski and Martha K. Swartz


6 Children, Youth, and Families Have High-Quality, Affordable, and Accessible Health Care


Judith A. Vessey, Cindy Smith Greenberg, and Amanda J. Lulloff


7 The Child’s, Youth’s, and Family’s Needs Are Identified, Prioritized, and Services Are Offered


Bonnie Gance-Cleveland


8 Children, Youth, and Families Receive Care That Optimizes Wellness, Promotes and Maintains Physical and Mental Health, and Prevents Disease and Injury


Mikki Meadows-Oliver, Sharon Tucker, and Bernadette Mazurek Melnyk


9 Pregnant Adolescents and Women, Children, Youth, and Families Have Access to Genetic and Genomic Testing and Genomic-Appropriate Counseling


Madalynn Neu and Pamela J. Burke


10 Children and Youth Receive Care That Is Delivered in a Physically and Emotionally Safe Environment


Anne L. Turner-Henson and Marilyn J. Krajicek


11 Children’s, Youth’s, and Families’ Privacy and Rights Are Protected


Ann Marie Rhodes and Martha Dewey Bergren


12 Children and Youth With Acute, Critical, or Chronic Needs and Their Families Receive the Full Range of Services


Nancy Blake


13 Children and Youth With Disabilities and/or Special Health Care Needs and Their Families Receive the Full Range of Services


Cecily L. Betz and Kathleen J. Sawin


14 Children, Youth, and Families Receive Appropriate Palliative and/or Hospice Care


Margaret M. Mahon


15 Children, Youth, and Families Receive Appropriate Prevention and Community Referral Services


M. Cynthia Logsdon and Rita H. Pickler


16 Children’s, Youth’s, and Families’ Health Risk Behaviors and Problems Are Identified and Addressed


Eileen K. Fry-Bowers


17 Children, Youth, and Families Are Fully Informed of the Process, Outcomes, and Alternatives to Care, Including Quality of Life


Cecily L. Betz


Index