Children and Youth with Complex Cerebral Palsy

Laurie Glader is an Assistant Professor at Harvard University Medical School. She trained in Developmental and Behavioral Pediatrics, ultimately focusing on children with medical complexity. Since 1997 she has directed the Complex Care Service Outpatient Program at Boston Children's Hospital (BCH), and provides patients with comprehensive medical care and developmental oversight. Her particular area of interest is children with cerebral palsy and models of care delivery. She is co-director of the large multi-disciplinary Cerebral Palsy and Spasticity Center at BCH. She is active in the American Academy of Cerebral Palsy and Developmental Medicine. Richard Stevenson is Professor of Pediatrics at the University of Virginia School of Medicine in the Division of Developmental Pediatrics, where he has been on the faculty since 1989. He is an attending pediatrician at the Child Development and Rehabilitation Center (CDRC) of the University of Virginia Children's Hospital, caring for children across the range of acquired and congenital disabilities. He is active in clinical care, education, research and administration. He is Past President of the American Academy for Cerebral Palsy and Developmental Medicine. His main interest and expertise relates to the care of children with cerebral palsy, and he has particular empathy for children with complex needs.

Author Appointments


Acknowledgements


Preface


Opening Quote





1. Overview and Introduction


Richard Stevenson and Laurie Glader





2. Functional Assessment and Goals of Management


Jilda N Vargus-Adams and Andrea L Paulson





3. Hypertonia


Darcy Fehlings, Anne Kawamura, Cecilia Lee and


Amber Makino





4. Musculoskeletal/Orthopedic Management


Mark J Romness and Victor Anciano





5. Seating, Mobility, and Equipment Needs


Christopher D Lunsford and Jonathan Greenwood





6. Osteoporosis and Fractures


Steven J Bachrach and Heidi H Kecskemethy





7. Feeding and Nutrition


Valentina Intagliata, Eva Delaney and Mary C Bickley





8. Gastrointestinal Issues


Beate Beinvogl and Munir Mobassaleh





9. Overview of Pulmonary and Sleep Disorders in


Children with Complex Cerebral Palsy


Umakanth Katwa and Sebastian K Welsh





10. Speech and Communication


John M Costello and Elizabeth N Rose





11. Cognitive and Sensory Impairment


Katheryn F Frazier





12.Challenging Behaviors, Sleep and Toileting


Alisa Bahl and Kurt A Freeman





13. Mental health in Children and Adolescents with


Cerebral Palsy


Kerim M Munir and Ikram Rustamov





14. Pain and Irritability


Julie Hauer





15. Seizures and Epilepsy in Children with Cerebral


Palsy


John R Mytinger and Howard P Goodkin





16. Urologic Issues


Stuart Bauer





17. Adolescence and Sexuality


Susan Hayden Gray





18. Transition to Adulthood


Kitty O'Hare and Claudio Melo de Gusmao





19. Evidence Based Care: A Tool Chest for Helping


Families Navigate Treatment Options


Lisa Samson-Fang





20. Difficult Topics and Decision Making


Jim Plews-Ogan and Richard I Grossberg





21. Through the Eyes of Parents


Michele Shusterman, Carol Shrader and


Jennifer Lyman





22. Growing up, Growing Well with Cerebral Palsy


Andrew J Smith, Chelsea Strawser, Benjamin


Schrader, Jaylan Norfleet and Garey Noritz








Appendix: Care Tools for Clinical Practice