Myotonic Dystrophy

Myotonic dystrophy is part of the group of muscular dystrophies. This book provides information on coping with the illness. It explains the symptoms and addresses some of the difficult issues facing sufferers and their families such as genetic testing and starting a family.

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Myotonic dystrophy is part of the group of muscular dystrophies. It is the commonest inherited muscular dystrophy and has a profound effect on individuals who are diagnosed with the disease and their families. It is present for many decades of a patient's life and has many attendant implications. Unlike the other dystrophies, it also affects other organs in the body, making this a very distinctive disorder, and a very troubling one for those close to it. This is the first book to be written for sufferers of this disorder. Written by the world authority on Myotonic dystrophy, Peter Harper, the book covers a wide range of aspects of the disease, explaining in simple terms exactly what the condition is, what the symptoms are and how they can or might develop. Self education is encouraged and this book gives anyone interested the tools with which to find out more and empower themselves by taking an active role in their own treatment. Most importantly it carries the message that there is hope, something can be done, even if there is, as yet, no actual cure. Anyone affected by this disorder will find this book a great source of hope and strength.