Comprehensive Cleft Care

Edited by Joseph E. Losee, MD, University of Pittsburgh, Pennsylvania, USA Richard E. Kirschner, MD, Nationwide Children's Hospital and The Ohio State University Medical College, Columbus, Ohio, USA

VOLUME I: NONSURGICAL FUNDAMENTALS Fundamentals of Team Care Marilyn A. Cohen Clinical Outcomes Research and Evidence-Based Practice William Christie Shaw, Gunvor Semb, and Anette Lohmander Advocacy and Cleft Care Marilyn A. Cohen Global Aspects of Cleft Care Randy Sherman and Alex Campbell EMBRYOLOGY, ANATOMY, CLASSIFICATION, EPIDEMIOLOGY, AND GENETICS Embryology of Orofacial Clefting Jingtao Li, Ryan C. Ransom, and Jill A. Helms Anatomy of Cleft Lip and Palate Martin H.S. Huang, Seng-Teik Lee, and Shu-Jin Lee Classification of Orofacial Clefts Mark P. Mooney, Carrie L. Heike, Sanjay Naran, and Seth M. Weinberg Epidemiology of Cleft Lip and Palate Laura E. Mitchell and Philip J. Lupo Prenatal Diagnosis of Facial Clefting David E. Kauffman and Lyndon M. Hill Genetic and Epigenetic Perspectives of Orofacial Clefting Robert M. Greene, M. Michele Pisano, and Dennis R. Warner Genetics of Nonsyndromic Orofacial Clefting Mary L. Marazita and Elizabeth J. Leslie Syndromes of Orofacial Clefting Marilyn C. Jones and Kenneth L. Jones 22q11.2 Deletion Syndrome Donna M. McDonald-McGinn, Lauren DiCairano, and Elaine H. Zackai NURSING AND PRIMARY CARE Prenatal and Genetic Counseling Donna M. McDonald-McGinn, Lauren DiCairano, and Michael T. Mennuti Feeding and Swallowing in Children With Cleft and Craniofacial Anomalies Scott A. Dailey Nursing Care of the Child With Cleft Lip and Palate Patricia Daly Chibbaro and Mary Breen Assessment and Management of Children With Cleft Lip and Palate Carrie L. Heike and Michael Lawrence Cunningham NEUROPSYCHOSOCIAL AND EDUCATIONAL ASPECTS Neuropsychosocial and Neuroimaging Aspects of Cleft Lip and Palate Amy L. Conrad, Peg C. Nopoulos, and Lynn C. Richman Psychological and Behavioral Aspects of Orofacial Clefting Kathleen A. Kapp-Simon, and Rebecca Gaither The Power of Difference: Social and Cultural Issues Associated With Clefts and Craniofacial Conditions Ronald P. Strauss, Stephanie E. Watkins, and Barry L. Ramsey Educating the Child With Cleft Lip and Palate Donna Cutler-Landsman The Role of Social Work in Cleft Care Lisa L. Repaske and Farah Sheikh Understanding Quality of Life Hillary L. Broder, Dina Ricciardi, Jasmine Y. Rodriguez, and Lacy Sischo Understanding the Burden of Care Ross E. Long, Jr. CLEFT PALATE SPEECH AND VELOPHARYNGEAL DYSFUNCTION Anatomy and Physiology of the Velopharynx Jamie L. Perry and David P. Kuehn Communication Disorders Associated With Cleft Palate Nancy J. Scherer and Linda L. D'Antonio Timing of Palatoplasty and Speech David L. Jones Assessment of Velopharyngeal Function Ann W. Kummer and Adriane L. Baylis Instrumental Measures of Velopharyngeal Function Virginia A. Hinton Speech Therapy for Children With Cleft Palate Lynn Marty Grames Noncleft Velopharyngeal Disorders Adriane L. Baylis OTOLOGIC, AUDIOLOGIC, AND AIRWAY ASSESSMENT AND MANAGEMENT Hearing Disorders and Middle-Ear Disease in Patients With Clefts Todd Otteson and Charles D. Bluestone Audiologic Assessment and Management of Children With Cleft Palate Diane L. Sabo and Gretchen Probst Pierre Robin Sequence: Assessment and Nonsurgical Management Kelly N. Evans and Kathleen C.Y. Sie Sleep Disordered Breathing Jodi Gustave and Mark Splaingard OUTCOMES AND RESEARCH Assessment of Orthodontic Outcomes in Patients With Clefts Ross E. Long and Scott A. Deacon Speech: Perceptual and Functional Outcomes Debbie Sell and Valerie Pereira Assessment of Cleft Lip and Nose Repair Outcomes Donald R. Mackay, Thomas Samson, and Cathy Henry