Hospice Care for Children

Introduction; SECTION I - ISSUES IN CLINICAL MANAGEMENT; Children's understanding of death; Pain and symptom management; Psychosocial aspects of serious illness in childhood and adolescence: curse or challenge; Caring for children with life-limiting illness and their families; Neonatal death; Care for the child with HIV infection and AIDS; SECTION II - SUPPORT SYSTEMS; Caring for bereaved parents; After a child dies: helping the siblings; Spiritual care of parents and children; Staff support; Unpaid staff: the volunteer component; Lessons in grief: a practical look at school programs; Therapeutic play and creative arts: helping children cope with illness, death and grief; The primary care physician's role; SECTION III - DIFFERENT CONTEXTS, DIFFERENT LESSONS; Learning from one another: lessons from pediatrics for palliative care; Palliative care in an inpatient hospital setting; Ethical decision making at the end of life; Incorporating children in an adult hospice program; Death-related literature for children and adolescents: selected, annotated, and with guidlines and resources for adults