Palliative and End of Life Care for Children and Young People (eBook)

Dr Anne Grinyer is Senior Lecturer in the Division of Health Research, Faculty of Health and Medicine, Lancaster University. She is Director of the taught Masters programmes in the Division of Health Research. Her teaching covers a range of issues and topics including research methods with a particular emphasis on the ethical challenges of health related research.

Participants viii

Foreword xii

Preface xiii

Acknowledgements xv

Abbreviations xvi

1 Palliative and End of Life Care for Children and Young
Adults 1

2 Home-based Palliative and End of Life Care 15

3 Hospice-based Palliative and End of Life Care 49

4 Hospital-based Palliative and End of Life Care 87

5 Preparation for the End of Life, Bereavement and Emotional
Support 117

6 The Implications for Policy and Practice 155

Appendix: Methodology 169

References 175

Index 181

"The usefulness of this book lies in the personal interviews
and challenges of real people facing real problems in caring for
their child or young adult. The years of research that went into
this book speak volumes about the dedication of this
author." (Doody's, 8 March 2013)

"If your work involves caring for younger people at the
end of life, you will recognise the hurdles and the problems, and
reading this book will encourage you to think about how we can make
these services better and more appropriate." (IAHPC
News, 1 December 2012)

"Overall the authors' extensive knowledge and
experience in the field enliven this book with a well balanced
critical appraisal of the current issues, a touch of humility and
an impassioned plea for better understanding and services for young
people. It's a worthy addition to anyone's collection
and deserves to succeed." (Nursing Times, 31
July 2012)

"This book offers valuable insight into what it is like to
care for a child or young person who is dying . . . It is an
excellent resource for nurses working in hospital, hospice and
community settings, for those in strategic roles and for nurses and
allied health professionals undertaking academic
study." (Cancer Nursing Practice, 1 July
2012)

"This book will undoubtedly be of use to nursing and
health-care students seeking prompts to help them consider problem
issues in palliative care practice, or possibly to help identify
new research questions. Practitioners in palliative services will
also find it a useful resource for illuminating the experiences of
individuals and families in their care."
(International Journal of Palliative Nursing, 2012)

"The book is nicely balanced reporting on the needs of
teenagers with cancer and the different challenges facing children
living with complex, long-term healthcare needs."
(Nursing Children and Young People, 1 June 2012)