Palliative Care for Infants, Children, and Adolescents

Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children's Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

List of Contributors
Preface
Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research
Chapter 2. Goals, Values, and Confl ict Resolution
Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions
Chapter 4. Educational Initiatives
Chapter 5. The Art of Advocacy
Part II: The Cycle of Care
Chapter 6. Decision Making
Chapter 7. Communication Skills and Relational Abilities
Chapter 8. Psychosocial Needs of the Child and Family
Chapter 9. Spiritual Dimensions
Chapter 10. Holistic Management of Symptoms
Chapter 11. Bereavement
Chapter 12. The Other Side of Caring: Caregiver Suffering
Part III: Special Care Environments and Patient Populations
Chapter 13. Palliative Care in the Neonatal-Perinatal Period
Chapter 14. Palliative Care in the Pediatric Intensive Care Setting
Chapter 15. Palliative Care in the Home, School, and Community
Chapter 16. Palliative Care for the Child Who Has a Genetic Condition
Chapter 17. Integrating Palliative Care with HIV Care and Treatment
Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology
Index