Handbook of Palliative Care

Dr. Christina Faull, MBBS, BMedSci, MD, FRCP, Dip Clin Hyp, PGCert Med Ed. (Principle editor of first 2 editions), Leicestershire & Rutland Organisation for the Relief of Suffering (LOROS), The Leicestershire & Rutland Hospice, Leicester, United Kingdom Sharon DeCastecker, RGN, MA, Head of Education, Leicestershire & Rutland Organisation for the Relief of Suffering (LOROS), The Leicestershire & Rutland Hospice, Leicester, United Kingdom Dr Alex Nicholson, MD, FRCP, Consultant in Palliative Medicine, Lead Clinician for Palliative Care, North of England Cancer Network, The James Cook University Hospital, Middlesbrough, United Kingdom Dr. Fraser Black, MD, Victoria Hospice, Victoria, British Columbia, Canada

List of contributors, vii

Foreword, x

Preface to the Third Edition, xii

Acknowledgements, xv

List of Abbreviations, xvi

1 The context and principles of palliative care, 1
Christina Faull

2 Palliative care in the community, 15
Daniel Munday and Rodger Charlton

3 Public and patient involvement in palliative care, 29
Neil Small

4 Palliative care: choice, equality, and diversity, 42
Liz Grant, Joanna Dunn and Aziz Sheikh

5 Ethical issues in palliative care, 52
Sharon de Caestecker

6 Communication skills in palliative care, 65
Sharon de Caestecker

7 Adapting to death, dying, and bereavement, 81
Christina Faull and Sue Taplin

8 Advance care planning, 93
Richard Wong

9 Pain and its management, 109
Alex Nicholson

10 The management of gastrointestinal symptoms and advanced liver disease, 139
Andrew Chilton, Christina Faull, Wendy Prentice and Monica Compton

11 The management of respiratory symptoms and advanced COPD, 160
Christine Jones

12 Managing complications of cancer, 184
Rachael Barton and Debbie Allanson

13 Palliative care for people with progressive neurological disorders, 207
David Oliver

14 Palliative care for people with HIV infection and AIDS, 218
Surinder Singh and Nick Theobald

15 Palliative care for children, 231
Harold Siden and Camara van Breemen

16 Palliative care for adolescents and young adults, 247
Daniel Kelly, Victoria Lidstone, Jacqueline Edwards and Jo Griffiths

17 Palliative care for people with advanced dementia, 257
Rachael E. Dixon

18 Palliative care in advanced heart disease, 265
Ryan Liebscher and Fraser Black

19 Palliative care in advanced renal disease, 279
Deb Braithwaite

20 Pressure ulcer care and the management of malignant wounds, 289
Mary Walding

21 Terminal care and dying, 295
Christina Faull and Alex Nicholson

22 The syringe driver and medicines management in palliative care, 323
Christine Hirsch and Maria McKenna

23 Complementary approaches to palliative cancer care, 340
Elizabeth Thompson and Catherine Zollman

24 Spirituality in palliative care, 356
Megory Anderson and Christina Faull

Index, 365