Dying and Disabled Children

Harold M. Dick, David Price Roye, Jr., Penelope R. Buschman, Austin H. Kutscher, Boris Rubinstein, and Francis K. Forstenzer Editors

Contents
I. Loss of a Body Part



Traumatic Amputation in Childhood: Functional and Psychosocial Aspects
Emotional Reactions to the Loss of a Body Part
Reaction of Children and Adolescents to Amputation
Amputation and the Reconstruction of Congenital Lesions
II. Loss of a Perfect Child
Loss of the “Perfect” Child and Ethical Decision Making: Miguel’s Story
III. Chronic Loss and Disability
Seeking Significance
Pediatric Orthopedics: Dealing With Loss and Chronic Sorrow
The Impact of the Disabled Child on the Family
Some Aspects of Psychosocial Sequelae to Treatment of Scoliosis in Adolescent Girls
IV. Dealing With Life-Threatening Disease
Care of the Dying Adolescent and the Bereaved Family
Depression, Denial, and Withdrawal in Mothers of Seriously Ill Children and Adolescents
Suffering by Children: Some Observations of Brave Children and Their Families at a Children’s Hospital
The Needs of Sarcoma Patients From Diagnosis Through Follow-Up
Treatment of Fractures in Children With Malignancies
Advantage of Early Spinal Stabilization and Fusion in Patients With Duchenne Muscular Dystrophy
Psychosocial Aspects of Chemotherapy
The Ultimate Loss: The Dying Child
V. Bereavement
Communication Among Children, Parents, and Funeral Directors
Parental Grief Over the Death of a Child