Translating Chronic Illness Research into Practice

Debbie Kralik is General Manager, Strategy and Research at the Royal District Nursing Service in South Australia and Associate Professor, University of South Australia and Adelaide University. Barbara Paterson is Professor of Nursing and Tier 1 Canada Research Chair in the Faculty of Nursing, University of New Brunswick, Canada. Vivien Coates is Professor of Nursing Research, School of Nursing, University of Ulster & Assistant Director of Nursing, Western Health & Social Care Trust. (Joint appointment).

List of Contributors Preface

1. Globalisation of Chronic Illness Research

Sally Wellard

Introduction

What is in a name?

Global crisis in chronic illness

Impact of chronic illness in developing nations

Trends in chronic illness research in developed nations

Policy drivers: taking action

Global initiatives for future chronic illness management

Conclusion

References

2. Transitional Processes and Chronic Illness

Debbie Kralik and Antonia van Loon

Introduction

The search

Defining transition

An emerging understanding of transition

Describing transition

Transition and identity

Transition and transformative learning

Transitional processes

A transition framework for practice

Conclusion

References

3. Translating Chronic Illness Research Across the Lifespan

Marit Kirkevold

Introduction

Human development across the lifespan

Key assumptions of the lifespan developmental perspective

Human development in old age

Applications of lifespan developmental perspectives in chronic illness research

Supporting age-appropriate development without jeopardising the safe management of serious chronic disease: the case of cystic fibrosis

Chronic illness in old age: providing developmentally appropriate integrity-promoting care to persons suffering from dementia

Conclusions and implications

References

4. Assisting People with Chronic Illness toManage Co-Morbid Conditions

Allison Williams

Introduction

Conceptualising co-morbidity

Social determinants of co-morbidities

The medical paradigm

Health-care systems

Co-morbidity management

Models of chronic illness management

Conclusion

References

5. Conceptualisation of Self-Management

Malcolm Battersby, Sharon Lawn and Rene Pols

Introduction

Background to the use of the term self-management

Historical developments in self-management

Associated concepts or models that overlap with or inform self-management

Alternative definitions of self-management

Conclusions: the future for chronic condition self-management

References

6. The Relevance of Self-Management Programmes for People with Chronic Disease at Risk for Disease-Related Complications

Barbara Paterson and Max Hopwood

Introduction

Background

Theoretical framework

Overview of relevant research

Sample

Participation

Attrition

Discussion

Conclusion

References

7. The Potential of Technology for Providing Social Support to People and Families

David B. Nicholas

Introduction

Background

The Internet as a health resource

Impact of advanced technology in fostering therapeutic gain: overview of relevant research

Social support delivery: considerations in selecting advanced technology methods

Into the virtual future

References

8. Chronic Illness Research: TranslatingWhat We Know into What We Do

Renee F. Lyons, Lynn McIntyre, Grace Warner, Celeste Alvaro, Alastair Buchan, Ian Reckless and Alison Kitson

Introduction

The task ahead

The dose–response problem

The promise of research

Knowledge translation: emerging from naïveté

Embedding KT within research agencies and grants

Web-based KT innovations

What chronic illness research gets taken up?

Policy containers and the future of chronic illness

The future of chronic illness: systems change using stroke examples

Conclusion

References

9. Future Directions

Debbie Kralik

Global perspective

Facilitating the will of the people

The evidence base

Technology and health promotion

Transition

Self-management and self-care

Health in the community

References

Index