The Handbook of Genetics & Society

Paul Atkinson is Distinguished Research Professor in Sociology at Cardiff University. He has published extensively on the sociology of medical knowledge and qualitative research methods. He is co-editor of Qualitative Research, and is an Academician of the Academy of Social Sciences. Peter Glasner is Professorial Fellow in the ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) at Cardiff University. His is co-editor of the journals New Genetics and Society, and 21st Century Society. He has a longstanding research interest in genetics, innovation and science policy. He is an Academician of the Academy of Social Sciences. Margaret Lock is Marjorie Bronfman Professor Emerita at McGill University, Montreal. She is the author and editor of 14 books including the award winning Twice Dead:Organ Transplants and the Reinvention of Death. Her current research project is on molecular genetics and the social ramifications of testing for susceptibility genes. She is a Fellow of the Royal Society of Canada.

Genetics and Society: Perspectives from the Twenty-first Century, Paul Atkinson, Peter Glasner and Margaret Lock Part 1: Biomedical Applications of New Genetic Technologies 1. Introduction, Susan Kelly 2. Biomedicalising Genetic Health, Diseases and Identities, Adele E. Clarke, Janet Shim, Sara Shostak, and Alondra Nelson 3. Stem Cells, Translational Research and the Sociology of Science, Steve Wainwright, Clare Williams, Mike Michael and Alan Cribb 4. Reproductive Genetics: From Choice to Ambivalence and Back Again, AnneKerr 5. Localizing Genetic Testing and Screening in Cyprus and Germany: Contingencies, Continuities, Ordering Effects and Bio-cultural Intimacy, Stefan Beck and Jörg Niewöhner 6. Nutrigenomics, Ruth Chadwick Part 2: Commercialisation Genomes and Markets 7. Introduction, Paul Atkinson 8. Making Europe Unsafe for Agbiotech, Les Levidow 9. Genetic Information and Insurance Underwriting: Contemporary Issues and Approaches in the Global Economy, Mark A. Rothstein J.D.and Yann Joly 10. On a Critical Path: Genomics, the Crisis of Pharmaceutical Productivity and the Search for Sustainability, Paul Martin, Michael Hopkins, Paul Nightingale and Alison Kraft 11. States, Markets and Networks in Bioeconomy Knowledge Value Chains, Phil Cooke Part 3: Representations of Genomics 12. Introduction, Maureen McNeil 13. Stakeholder Representations in Genomics, Edna Einsiedel 14. Human Genetics and Cloning in the Media: Mapping the Research Field, Joan Haran and Jenny Kitzinger 15. Cultural Imaginaries and Laboratories of the Real: Representing the Genetic Sciences, Suzanne Anker 16. Genes In Our kNot, Mike Fortun Part 4: Regulation: Expressing the Gene 17. Introduction, Andrew Webster 18. Law and Regulation, Sheila McLean 19. Forensic DNA Databases and Biolegality: The Co-Production of Law, Surveillance Technology and Suspect Bodies, Mike Lynch, and Ruth McNally 20. Bio-Banks and the Challenges of Governance, Legitimacy and Benefit, Oonagh Corrigan, and Richard Tutton Part 5: Bioethics and Genetics 21. Introduction, Ruth Chadwick 22. Rethinking Privacy in the Genetics Age, David Wiesbrot 23. Bioethics and Human Genetic Engineering, John Evans and Cynthia Schairer 24. Towards a Bioethics of Disability and Impairment, Jackie Leach Scully 25. Ethical Perspectives on Animal Biotechnology, Mickey Gjerris, Anna Olsson, Jesper Lassen, Peter Sandøe Part 6: Diversity and Justice 26. Introduction, Barbara Katz Rothman 27. Religion and Nationhood: Collective Identities and the New Genetics, Barbara Prainsack and Yael Hashiloni-Dolev 28. Extravagance or the Good and the Bad of Genetic Diversity, Amade M’charek 29. Eugenics, Lene Koch 30. Human Dignity and Biotechnology Policy, Timothy Caulfield and Ubaka Ogbogu Part7: New Forms of Knowledge Production 31. Introduction, Alberto Cambrosio 32. Centralising Labels to Distribute Data: The Regulatory Role of Genomic Consortia, Sabina Leonelli 33. Innovative Genetic Technologies, Governance and Social Accountability, Andrew Webster 34. Genomic Platforms and Hybrid Formations, Alberto Cambrosio, Peter Keating, Pascalle Bourret, Phillipe Mustar, Susan Rogers