Dementia and Society

Mathieu Vandenbulcke is Chair of the Geriatric Psychiatry Department of the University Hospitals Leuven, Full Professor at the department of neurosciences and Director of the KU Leuven Brain Institute. Rose-Marie Dröes is professor of psychosocial care for people with dementia and head of the research group 'Care and support in dementia' at the department of Psychiatry of Amsterdam UMC, location VU University medical center. She is also Chair of the worldwide MeetingDem Network, which promotes knowledge exchange on effective post-diagnostic care and support for community-dwelling people with dementia and their carers via Meeting Centres. Erik Schokkaert is Professor Emeritus of Welfare and Health Economics at the KULeuven. In the past ten years he chaired the interdisciplinary think tank “Metaforum”. He is a former Research Director of CORE (Université catholique de Louvain) and has been Visiting Professor at the London School of Economics.

Introduction: Mathieu Vandenbulcke, Erik Schokkaert and Rose-Marie Dröes; 1. Different perspectives on dementia Lies Van Assche, Martin Rossor, Constantine Lyketsos, John Keady and Mathieu Vandenbulcke; 2. From history to intervention: a socio-cultural analysis of dementia stigma Perla Werner, Pieter Vermeulen, Baldwin Van Gorp and Peter Simonsen; 3. Personhood, identity, and autonomy Bart Pattyn, Peter Hacker, Ursula Basset, Mathieu Vandenbulcke and Rose-Marie Dröes; 4. Living meaningfully with dementia Laura Dewitte, Gørill Haugan, Mathieu Vandenbulcke and Jessie Dezutter; 5. Quality of life of persons with dementia: different disciplinary perspectives Rose-Marie Dröes, Teake Ettema, Martin Knapp and Erik Schokkaert; 6. Living with dementia: relationships, intimacy, sexuality, and care Frauke Claes, Nelle Frederix and Paul Enzlin; 7. Informal care for persons with dementia: characteristics and evidence-based support interventions Anja Declercq, Rose-Marie Dröes, Mary Mittelman and Chantal Van Audenhove; 8. Risk factors and non-pharmacological prevention of dementia Rudi D'Hooge, Ann Van der Jeugd, Sebastiaan Engelborghs, Frans Boch Waldorff and Mathieu Vandenbulcke; 9. An empowering dementia environment Jos Tournoy, John Keady, Mythily Subramaniam, Evelien Coppens, Aline Sevenants, Chantal Van Audenhove, Maarten Van Den Bossche, Iris Van Steenwinkel and Ann Heylighen; 10. The impact of the covid-19 pandemic on the well-being of people living with dementia Debby Gerritsen, Henriette van de Roest, Shirley Evans, Ruslan Leontjevas, Marleen Prins, Dawn Brooker and Rose-Marie Dröes; 11. Care planning and the lived experience of dementia: establishing real will and preferences beyond mental capacity Tim Opgenhaffen, Johan Put, Jan De Lepeleire, John Keady and Aagje Swinnen; 12. Societal and ethical views on end-of-life decisions in dementia Chris Gastmans, Jenny van der Steen and Wilco Achterberg; 13. Driving and dementia Catarina Lundberg and Dorota Religa; 14. Social and private costs of dementia care Patrick Cloos, Martin Knapp, Jeroen Luyten, Erik Schokkaert and Cheng Shi.