Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders

Anna J. Esbensen works at Cincinnati Children’s Hospital, Cincinnati, Ohio, USA Emily K. Schworer works at Cincinnati Children’s Hospital, Cincinnati, Ohio, USA

1. Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials
Anna Esbensen, Emily K. Schworer, Deborah J. Fidler, Angie John Thurman
2. Remotely Monitoring Development and Treatment Outcomes in Families affected by IDD
Bridgette Kelleher, Tyra Protho, Lisa Hamrick, Andrea DeMaria, Carolyn McCormick, Mandy Rispoli, Delta Smith, Jamie Krueger?
3. Psychometric perspectives on developmental outcome and endpoint selection in treatment trials for genetic conditions associated with neurodevelopmental disorder
Cristan Farmer, Audrey Thurm, Liz Berry-Kravis, Aaron Kaat
4. Evaluating Outcomes within Culturally Diverse Contexts for Children and Youth with Developmental Disabilities
Sandra B. Vanegas, Sandy Magana
5. Measurement of Social Skills Treatment Outcome in Autism: Moving Beyond Informant Report and Considering Diversity
Elizabeth Laugeson, Christine T. Moody, Hillary K. Schiltz, Allison B. Ratto, Amanda Gulsrud
6. Cognitive Outcome Measures for tracking alzhiemer’s Disease in Down syndrome
Sigan Hartley, Tori Fleming, Christy Hom, Isabel Clare, Sharon Krinsky-McHale, Benjamin Handen, Shemaya Hurd-Thomas
7. A Scoping Review of Psychosocial Interventions for Neurogenetic Conditions across the Lifespan
Marisa Fisher, Bonita P Klein-Tasman, Allora Mohanty
8. Clinical Trials and Outcome Measures: Lessons Learned from Chromosome 15 disorders
Jessica Duis
9. Well-being and challenging behaviour in people with severe intellectual disability and complex needs: Assessment of causes and evaluation of outcomes of interventions
Chris Oliver, Dawn Adams, Georgie Agar, Debbie Allen, Stacey Bissell, Justin Chung, Hayley Crawford, Kat Ellis, Laura Groves, May Heald, Lauren Jenner, Jo Moss, Effie Pearson, Caroline Richards, Rachel Royston, Jane Waite, Alice Welham, Lucy Wilde, Kate Woodcock
10. Novel cognitive, language, biophysical and molecular outcomes and response predictors for clinical trials in fragile X syndrome
Craig Erickson, David Hessl, Leonard Abbeduto, Anne Hoffmann, Laura Del Hoyo Soriano, Lauren Bullard, Angela John Thurman, Ernest Pedapati, Lauren Ethridge, Christina Gross, Kevin J Sharp, Elizabeth M Berry-Kravis