Rare

Zoë’s unique experiences and detailed information will be useful to sufferers, and health professionals alike, when confronting Tuberous Sclerosis or LAM.

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Zoë has been a Support Worker for the learning disability charity Mencap for five years and has just qualified as a counsellor. What many people don't know is that Zoë has two rare health conditions, Tuberous Sclerosis Complex (TSC) and LAM caused by two connected faulty genes that can affect the brain, skin, kidneys and lungs.

Zoë had a relatively symptom-free childhood but as she entered adulthood, she suffered a life-threatening kidney bleed and multiple lung collapses that took a toll on her mental health. Throughout Rare, Zoë shares her journey of recovery and how she has come to accept aspects of herself that seemed impossible to surmount.