Genetic Counseling Practice (eBook)

Bonnie S LeRoy, MS, Department of Genetics, Cell Biology, & Development, University of Minnesota, USA Patricia M Veach, PhD, Department of Educational Psychology, University of Minnesota, USA Diane M Bartels, PhD, Center for Bioethics, University of Minnesota, USA

CONTRIBUTORS vii

PREFACE xi

1 INTRODUCTION 1

Bonnie S. LeRoy, Patricia McCarthy Veach, and Dianne M.
Bartels

PART I GENETIC COUNSELING DYNAMICS.

2 COMPLICATED SHADOWS: A CRITIQUE OF AUTONOMY IN GENETIC
COUNSELING 13

Robert G. Resta

3 ACTIVELY ENGAGING WITH PATIENTS IN DECISION MAKING 31

Andrea Zanko and Michelle Fox

4 RISK COMMUNICATION: A COMPLEX PROCESS 65

Shannan DeLany Dixon and Yasmine L. Konheim-Kalkstein

5 GRIEVING: AN INEVITABLE JOURNEY 95

Elizabeth Gettig

6 FACING PATIENT ANGER 125

Bonnie Jeanne Baty

7 RESISTANCE AND ADHERENCE: UNDERSTANDING THE PATIENT'S
PERSPECTIVE 155

Jon Weil

8 COUNTERTRANSFERENCE: MAKING THE UNCONSCIOUS CONSCIOUS
175

Jon Weil

PART II CLIENT CULTURAL AND INDIVIDUAL
CHARACTERISTICS.

9 HONORING DIVERSITY: CULTURAL COMPETENCE IN GENETIC COUNSELING
201

Linwood J. Lewis

10 GENETIC COUNSELING STRATEGIES FOR WORKING WITH FAMILIES
235

Deborah L. Eunpu

11 DEVELOPMENTALLY BASED APPROACHES FOR COUNSELING CHILDREN AND
ADOLESCENTS 253

Stephanie Austin

12 GENETIC COUNSELING FOR WOMEN WITH INTELLECTUAL DISABILITIES
281

Brenda Finucane

PART III GENETIC COUNSELOR DEVELOPMENT.

13 GENETIC COUNSELORS: CARING MINDFULLY FOR OURSELVES 307

June A. Peters

14 PROFESSIONAL DEVELOPMENT: REFLECTIVE GENETIC COUNSELING
PRACTICE 353

Kimberly W. Zahm

15 MOBILIZING GENETIC COUNSELOR LEADERSHIP SKILLS 381

Nancy P. Callanan

INDEX 401

"Finally, the experience of the authors is evident in the writing and the book is underpinned by a wide range of current references. This is a comprehensive publication that will be of interest to genetic counsellors working in a range of settings." (Hum Genet, 2010)

"Who would read this volume? As the mantra of the time is genetic determinism, literally everyone could benefit from this book. For genetic counsellors, this volume would be a valuable textbook for their shelf. " (Sultan Qaboos University Medical Journal, 1 August 2010)