Supporting Children with Medical Conditions

Susan Coulter – Senior Support Teacher for the Education Service for Physical Disability, Hull City Council, UK Lesley Kynman – Senior Support Teacher for the Education Service for Physical Disability, Hull City Council, UK Elizabeth Morling – MA, Series Editor, SEN Consultant and former Head of the Education Service for Physical Disability, Hull City Council, UK Francesca Murray – Key Worker, Hull and District Cerebral Palsy Society, UK Rob Grayson – MA, Team Leader for the Integrated Physical and Sensory Services, Hull City Council, UK Jill Wing – MA (hons), Senior Support Teacher for the Integrated Physical and Sensory Services, Hull City Council, UK

Foreword Introduction Section 1: Legislation and guidance 1. Legislation and guidance 2. Governing body responsibilities Section 2 Pupils and parents 3. Pupil’s perspective 4. Parent’s perspective Section 3: Medical conditions and possible educational implications 5. Anaphylactic shock (anaphylaxis) 6. Arthrogryposis 7. Asthma 8. Managing an asthma attack 9. Brittle bone disease (osteogenesis imperfecta) 10. Cerebral palsy 11. Club foot (talipes) and limb lengthening treatment 12. Cystic fibrosis 13. Diabetes 14. First aid/emergency responses 15. Eczema 16. Epilepsy 17. Haemophilia 18. Head injuries including brain tumour, meningitis and road traffic accidents 19. Heart conditions 20. Hip problems 21. Hirschsprung’s disease 22. Hydrocephalus 23. Hypermobility syndromes 24. Juvenile arthritis 25. ME (Myalgic Encephalomyelitis) or CFS (chronic fatigue syndrome) 26. Muscular dystrophy 27. Perthes disease 28. Prader-Willi syndrome 29. Restricted growth 30. Spina bifida 31. Spinal injuries Section 4: Meeting the pupil’s medical and physical needs 32. Staff supporting pupil with a medical condition 33. Individual Health Care Plans 34. Managing medicines on school premises 35. Access to buildings 36. Mobility issues 37. Adapted furniture 38. Off site activities 39. Intimate personal care for pupils (guidelines for staff) 40. Toilet adaptations 41. Introducing toilet training 42 Bowel incontinence Section 5: Access to the curriculum 43. Classroom organisation 44. Alternative recording strategies 45. Specialised fine motor equipment 46. Access to ICT 47. Accessing the PE curriculum 48. Accessing Design and Technology Section 6: Developing skills for learning 49. Developing visual perception 50. Memory skills 51. Promoting attention and listening skills 52. Developing organisational skills 53. Supporting emotional issues 54. Developing a positive self-image References and further reading Suppliers