Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine
Emerald Publishing Limited (Verlag)
978-1-80262-310-9 (ISBN)
Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine reviews the ethical foundations that drive our approach, data collection (public data, private data and data privacy), data stratification methodologies to support marginalized and intersectional populations, analysis techniques, algorithmic development to maintain privacy, survival analysis, result interpretation, LHS development, and LHS implementation. These methodologies address the HIPAA Privacy Rule, which clearly establishes the standard to protect digitally held health care data.
Informing both research and practice, Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine brings attention to an important issue that lies at the intersection of medicine, science, and digital technology and communication.
Virginia M. Miori is a Full Professor and Chair of the Decision and System Sciences Department in the Haub School of Business at Saint Joseph's University, USA. Daniel J. Miori, MS PA-C, is a physician assistant and author. He works on the Palliative and Supportive Care team and is on the ethics committee at Erie County Medical Center in Buffalo, NY, USA. Flavia Burton is Assistant Professor of Practice with the Department of Decision and System Sciences (DSS) in the Haub School of Business at Saint Joseph's University, USA. Catherine G. Cardamone is Adjunct Professor with the Department of Decision and System Sciences (DSS) in the Haub School of Business at Saint Joseph's University, USA.
Chapter 1. Making the Case; Daniel J. Miori
Chapter 2. Privacy and Learning Health Systems; Daniel J. Miori
Chapter 3. Shaping the Continuum of Care Through Public Policy and Data; Thomas R. Martin
Chapter 4. Public Data Sources: Cleaning and Wrangling; Virginia M Miori
Chapter 5. Public Data Sources: Sizing the Palliative Population; Virginia M Miori
Chapter 6. Private Data Sources, Data Privacy and Data Simulations for Palliative LHS; Virginia M Miori
Chapter 7. Synthea Descriptive Analysis; Virginia M Miori
Chapter 8. Palliative LHS Analysis; Virginia M Miori
Chapter 9. Data Repository Design for Public Data Analysis; Brian W. Segulin
Chapter 10. Palliative LHS Development and API to Ensure Data Privacy; Brian W. Segulin
Chapter 11. Learning Health Systems Ethics Review; Daniel J. Miori
| Erscheinungsdatum | 25.10.2023 |
|---|---|
| Reihe/Serie | Studies in Media and Communications |
| Verlagsort | Bingley |
| Sprache | englisch |
| Maße | 152 x 229 mm |
| Gewicht | 381 g |
| Themenwelt | Medizin / Pharmazie ► Medizinische Fachgebiete ► Medizinethik |
| Studium ► Querschnittsbereiche ► Geschichte / Ethik der Medizin | |
| Sozialwissenschaften ► Kommunikation / Medien ► Medienwissenschaft | |
| Sozialwissenschaften ► Soziologie | |
| ISBN-10 | 1-80262-310-8 / 1802623108 |
| ISBN-13 | 978-1-80262-310-9 / 9781802623109 |
| Zustand | Neuware |
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